Hi Everyone
Just to let you know I had my op 2 weeks ago for the removal of the tumour attached to my corited and jugular artery. I have had a hariy time of it. The op should have been for 4 hours and ended up 8 1/2. The docs harvested some fat from my stomach to pack into the hole in my skull, whilst in recovery I developed a bool clot. A decision had to make where it was, my head or my stomach. My bllod pressure was sky high, the doc decided to go for the stomach and thank goodness that was where it was. Another 4 hr op. I was away with the fairies for 3 days. My hb levels were rock bottom and I need a transfusion. Fifteen minutes into the transfusion I had a severe reaction to it. Violently sick and a rash. I had to be stopped immediately. You can imagine my energy levels are really low. But hey it could have been so much worse. My family were scared to death. Of course for a while I knew none of this. I see the consultant next week and hope & pray he managed to get it all. I want to thank you all for your kind words and prayers which helped me so much.
Love
Chris C
FormerMember
Hi Chris,
How relieved am I to see your post on here. I sent you a PM not long after I got back from Israel and when I didn't get a reply, I did start to wonder .....
Anyway, it sounds like you've had a really tough time of it but I wish you a speedy recovery and hope that it's all gonna be good news from now on.
Hi Chris, I would just like to offer some emotional support. You seem to have had a rough time of it so far and I hope that things pick up for you soon. Good luck for next week when you see oncologist for results. I will remember you in my prayers if that is ok with you. x x
It has been comfirmed as CS. I will need a scan in 6 months time. It is low grade so that is good news but I may need another op. I really do not want to go through that again. Because the tunour is so rare they are not certain how to proceed with it. My consultant is writing to people to find out how to proceed. I know of somebody with CS similar to mine in Essex and he had gamma knife. My balance is still shaky and I am slow at walking but each week I feel better. Can't believe how tired I get.
