BouncingCzech's blog

Well I got discharged from Hospital on monday after all my chemo, managed to persuade them to keep me in the whole day rather than pushing me in to the day area since I felt pretty rubbish. Plus I had no food with me so I would have been absolutely starving all day. The Cyclophosphomide and the IT chemo really knocked me, infact it's the first time I've vomitted since all this started, that drive home was no fun at all…

My parents and I met with my consultant on Friday and while there was no terrible news, it still seemed like a pretty devastating meeting. I hadn't had any proper sleep for days so to be fair any bad news would have seemed a hell of a lot worse than it really was. I suppose the news wasn't really even that bad, of the three test results from the bone marrow test one of them came back positive. This means that I'm going…

Woke up at 3am again, feel like I haven't had a decent nights sleep in a month. I thought I slept fairly well last night but I still felt absolutely shattered all day, strange thing is the day before I felt pretty good and I got next to no sleep the night before that... I'm still hoping it's down to the steroids but I don't know, I've been getting a lot of indegestion and heart burn over the last couple of days which…

4:18am, not a lot of sleep again but I'm trying to be more disciplined about getting out of this living room and going back to bed for a few more hours sleep. Today's going to be pretty epic. Get to the hospital for midday for: 1 ) Ambisone 2 ) Bone Marrow test 3 ) (possibly) another intrathecal 4 ) an hour drip Looks like another 7 hour session so I'm gonna get a taxi down there.. and make sure I cook myself a big…

In bed at 9pm... awake at 1:30am... really looking forward to getting off these steroids. I had a good weekend, mum and dad came down saturday and cooked us a meal and we watched Overboard (romcom classic). Few of my mates came down saturday/sunday as well, really good to see them, played a bit of Wii and... yeah, cooked some more food. Cooked an absolutely cracking leg of lamb sunday night, with apple pie for pudding…