BouncingCzech's blog

My Doctor phoned with me with the results of my MRD, it came back negative so there's no need for me to have any of the neurotoxic chemo (like the vincristine), so that should mean I get a couple of weeks off chemo. I've got an asparaginase injection on tuesday but thats it really, no more cytarabine, just ambisone. So I'm in to molecular remission, I've got an appointment booked for a test dose of radiation on the 23rd…

It turns out I haven't had my MRD bone marrow result yet so I don't know whether I'm in molecular remission just yet, still my doctor's already decided I'm not going to have any more of the Vincristine which is good news because between the pain in my feet and the weakness in my hands its really starting to affect me. Hopefully though I'll be in to low risk territory now but either way I have my introduction to radiotherapy…

Well I went back in to hospital last week with a temperature, didn't feel too bad just a bit sick and that but I ended up staying in a whole week on another course of antibiotics. Three infections in three weeks, must be some kind of record, I've spent more time as an in-patient than an out-patient. I'm out now anyway and after a little while of letting my blood counts recover I'm back on the second half of this chemo…

Updates have been pretty few and far between on here I appreciate, for a couple weeks I've just felt pretty terrible. Not just with headaches and tiredness but its just seemed like things have been piling up more and more and there was no end to it really with test results, stastics, side effects etc. Still, since I was admitted to hospital Monday the 9th I started to feel a lot better. I was in for two weeks all in…

Well I haven't done this for a while so I thought I better get to it, I've had a pretty rough week or so with symptoms and the like, I've been feeling much better since sunday afternoon though. Ironically, even though I feel right I am back staying at hospital again at the moment since they're a bit worried about my temperature and some other things, worried I may have caught something but my temperatures gone down so…