Another long week

2 minute read time.
Well I got discharged from Hospital on monday after all my chemo, managed to persuade them to keep me in the whole day rather than pushing me in to the day area since I felt pretty rubbish. Plus I had no food with me so I would have been absolutely starving all day. The Cyclophosphomide and the IT chemo really knocked me, infact it's the first time I've vomitted since all this started, that drive home was no fun at all. I felt pretty crap throughout tuesday and most wednesday, headaches, tiredness and nausea but it started to ease of wednesday evening. Wednesday my parents and I met with Professor Spencer Marks (my consultants husband) to discuss my transplant. Again it was another meeting of pretty upsetting facts and figures, but I have every confidence in him, he seems brilliant. The first thing he said to me was that they are very confident of a cure for me and I could tell he wasn't the kind of person to say that unless he really meant it. He's been writing papers and conducting studies in to ALL, he was leaving for the US in the next few days to present a paper on their findings, so I'm confident he's the man for the job. Wednesday was also my 22nd Birthday... probably not the best birthday I've had! But still in the end it turned out pretty good, I started to feel a lot better in the evening and I got some briliant presents from my friends and family, plus I watched WALL-E. I was pretty suprised when the nurses in the day area came round with a card and a little cake for me, it was very sweet of them. Thursday and Friday I've been feeling okay, pretty tired and the odd headache but I'm eating a lot better. My sister came down and took me to the Hospital both Thursday and Friday which was good, it was nice to have somebody there for a change. Thursday's treatment was pretty quick which meant we could head down to the pub after, where I had a cracking sausage and mash. Friday however we were not so lucky. Arrived at the Hospital at 11:30am, I think I got home at about 10:30pm. I had to have a couple of bags of blood, which in itself takes ages, then I had to go down for an MRI scan of my head just to make sure these headaches weren't anything serious (I'll get those results on monday I suppose), the porters took ages as did the scan, then the porters managed to lose my notes so I couldn't carry on with my treatment until they were found.... then the fire alarm went off.... it was a long day. Still today promises to be fun, got all my mates round for my birthday, gonna play some games and that, should be good. Just a bit worried since I woke up this morning and the wound where I had that biopsy done back in december feels really tender and sore all of a sudden, I'll give the hospital a ring in a bit I think and ask them about it. In myself I'm feeling... alright. I'm pretty worried about all the facts and figures that the Professor gave me about the transplant and the cranial radiotherapy but at the end of the day it still sounds like the best route to cure and if he's confident then I should be to.
Anonymous
  • FormerMember
    FormerMember

    I find it unbelievable that none of the consultants, nurses or doctors treating my husband has ever mentioned the benefits of a healthy diet to combat the effects of treatment and even help the immune system fight back. In fact they look at me incredulously when I mention it. According to many books and papers written by emminent specialists, Chemo (and radiation) apparantly causes problems with the digestive system and helps to kill of all the healthy bacteria. Yet they are staggered that my husband has suffered so few symptoms. I can tell them........Prebiotics, Probiotics, organic fruit, veg and meat and healthy diet, plus good quality supplements. I wish they would just open their minds to the benefits.

  • FormerMember
    FormerMember

    Hi Will, Thanks for the update and a belatred Many Happy Returns! I hope yu managed to enjoy your weekend plans with your friends. Sounds like they spoilt you - and so they should! What are mates for on your birthday!  Obviously another busy week for you, and more facts to take on board, but you are right to have faith in your Consultant, that will be very important.Equally he has to have faith in you as well........ and I can only reiterate you are young and strong and that counts for so much!

    How is the wound that was so sore? Did you call the hospital? You were also waiting results on your MRI scan?

    Try and keep smiling, I think you ae doing fab!

    Take care, Debbie

    PS Are you managing any study?