4:18am, not a lot of sleep again but I'm trying to be more disciplined about getting out of this living room and going back to bed for a few more hours sleep.
Today's going to be pretty epic. Get to the hospital for midday for:
1 ) Ambisone
2 ) Bone Marrow test
3 ) (possibly) another intrathecal
4 ) an hour drip
Looks like another 7 hour session so I'm gonna get a taxi down there.. and make sure I cook myself a big pasta salad to take with me and don't forget a fork this time.
To be honest, I'm kinda nervous, it's a lot of treatment but I really want those results from the bone marrow. From talking to Jenny the results of this bone marrow really determine my treatment for the next month or more and I'll find out exactly how much my counts have recovered.
Big day, I'll write more later.
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It turned out I only had the ambisone and some IT Chemo today, the bone marrow needs to be taken straight to the lab and tested so trying to do it on a friday afternoon wasn't going to happen. So I've got the bone marrow test on monday but my blood counts are really good so we're going to go ahead and change around some of my drugs.
As of now I get to start taking less and less of the dexamathosone (the steroids), which is brilliant, and on sunday I have to start taking the Mercaptopurine.
I'm headed back home this weekend to see my family and my friends so should be a good weekend! Feeling pretty good, the sickness has been calming down and I've got some other pills that should help anyway.
Right, I better get some more sleep, busy day ahead :)
FormerMember
I don't know much about you = I am fairly new here and I am having difficulty in finding the beginning of some blogs. I frequently get the last message but it doesn't make a lot of sense because I don't understand the background.
However you sound like an amazing young guy with enormous fortitude - all power to you in what sounds to be an enormous fight and I look forward to reading more of your updates!!
Now!! If someone can teach me how to start at the beginning of a blog so I can reply with some knowedge I would truly appreciate your help!!
if you look at the start on the top where it says Blogs: BouncingCzech's Blog and click on the BouncingCzech's Blog you can follow all his entries. If you go to the bottom of the page you can chose to click on last that will take you to the last page then go to the bottom of that and that is the start of the blog.
Hi Will, hope the weekend is going just as you planned, Pleased to read all is ticking along OK and that the sickness is settling, need to sort your sleep pattern out now! Fingers crossed bone marrow will be aken on Monday as planned and that results are promising.
