BouncingCzech's blog

My blogs have been a little thin on the ground recently, mainly because I haven't really felt up to writing a great deal, I'm feeling less tired at the moment but I'm still on that downward slope of feeling worse and worse every day, hopefully it'l be one week getting worse and then one week getting better but the Doctor's can't really give you a timescale when its different for everybody. My throat's getting more painful…

Been a bit of a while since my last update, the conditioning all went alright. The weekend of chemotherapy last weekend went pretty well, all the Cyclophosphamide went down a lot better than it normally does, I didn't feel sick at all really. The Campath gave me a rash but it just meant more piriton which was fine. The monday after I went back to the apartment I still felt okay but when I had a pretty rough nights sleep…

Well I've had my first couple of days of the conditioning period (the 11 days prior to the transplant that'l wipe out my own immune system), just the CNS boosts so far which have been pretty straight forward. They're just short blasts of radiation to my head, they mould this piece of plastic with loads of holes in it around my face and than strap it to the bed to keep me in place and mark certain sections. Side effects…

I was given a new date to go in to Hospital, so I'll be admitted on the 27th of April and transplant day should be the 8th of May. They decided over the easter weekend I needed a top of chemo, not a whole regime just 4 days of cytarabine and 5 days of steroids. It hasn't affected me too much, my haemoglobin got pretty low at one point and I started feeling pretty tired and getting some headaches but the transfusion I…

Not much been going on the last few weeks, I havent been on any chemo since I'm well in to remission so I've been feeling good. Still going in for ambisone and various tests and checks in preperation for my transplant. I was given a transplant date of a couple of weeks time but it turns out my donor cannot make a Tuesday or a Thursday and according to the coordinator it has to be one of those days. So they've moved on…