It turns out I haven't had my MRD bone marrow result yet so I don't know whether I'm in molecular remission just yet, still my doctor's already decided I'm not going to have any more of the Vincristine which is good news because between the pain in my feet and the weakness in my hands its really starting to affect me. Hopefully though I'll be in to low risk territory now but either way I have my introduction to radiotherapy and the conditioning booked for the end of the month.
I have to go for a test dose of radiation, they're going to make a mould of my head apparently so it'l keep me totally still when I lay in there. Also I have to have an echocardiagram, dental check and several other checks before it all goes ahead. I'll be meeting with the transplant coordinator as well so hopefully they can give me insight in to what happens next.
They managed to secure me some Palifermin, though we're not sure how much for at the minute, hopefully it was around the originally £3,600 mark... not the £20,000 that was mentioned. Least we have it though, that's the main thing.
FormerMember
Hi Will, it sounds like things are moving, can I presume they have identified a donor? Do you have a date yet? All the best with the transplant co- ordinator, remember they have to tell you all the facts, I think you sat through something similar when your parents were with you? You have done so well. come so far, I hope your friends are continuing to support you and you have managed to spend some time with your girlfriend and family. How is Uni going?
