Asking all the wrong questions

  • Help at last I hope

    FormerMember
    FormerMember

    Today is day 3 of the reduced dexamethasone and he is slowly slowly starting to calm down.  He is still utterly confused but not so manic angry and agitated.  I went to see my gp yesterday he phoned the local hospice and asked them to contact me regarding help and support so hopefully help is here at last.  

  • No help here then.

    FormerMember
    FormerMember

    There was no reasoning with my husband, I thought they had understood what I had explained about what was happening to him, but no all I could see were faces struggling not to look too pissed off as Karl raged and let no one else speak during the whole appointment.  When I left the office I asked the oncologist if she found that exhausting she said yes - he had only been there 20 minutes.  she said I needed to slowly reduce…

  • Dexamethasone.

    FormerMember
    FormerMember

    Over the course of that day and the next I realised the extent of the changes in my husband.  By the Monday he was exhibiting borderline psychotic behaviour.  He was manic angry confused and controlling and I do not mean a little. I was in no way prepared for this.   I have one question? Why didn't someone warn me of the potential side effects of a high dose of dexamethasone.  On the upside trying to find out what was…

  • Finding out more

    FormerMember
    FormerMember

    My husband seemed completely numb to what she had to say and was being a little strange. After the doctor left us he seemed very confused and angry and quite horrible.  I figured it was understandable but I was reeling especially as I had received a text from my sister to say mum had only a couple of hours left.  I went to the quiet room to had a quick cry and pull myself together, I asked to have a quick word with the…

  • Finding out.

    FormerMember
    FormerMember

    My husband Karl was admitted to hospital after 18 months of seeing various specialists to find out why he was in pain, losing weight and vomiting.  He was admitted on New Years Eve 2014.  My gp called an ambulance because at this point he was very weak and the vomiting was so bad he couldn't hold anything down.  About three weeks previous to this a rheumatoid consultant that we had been sent to had asked for a full body…