No help here then.

1 minute read time.

There was no reasoning with my husband, I thought they had understood what I had explained about what was happening to him, but no all I could see were faces struggling not to look too pissed off as Karl raged and let no one else speak during the whole appointment.  When I left the office I asked the oncologist if she found that exhausting she said yes - he had only been there 20 minutes.  she said I needed to slowly reduce the dexamethasone so we could have a more productive appointment.  I asked her to not make me wait and please acknowledge if this was terminal, she said it was.  The Macmillan nurse went into a quiet room with us to discuss some things.  I'm so sorry because I'm sure that Macmillan nurses are the best and most amazing creatures there are but this just wasn't my experience on this day.  Karl said he needs to tell me to shut up and she argued with him telling him that if her husband said that to her she would tell him to shut up back and when he disagreed she just kept telling him she was entitled to her own opinion.  Now I'm sure that if someone is being cantankerous this is a great approach but he wasn't cantankerous he was delusional and agitated and after winding him up by several degrees they left me to it.

Anonymous
  • FormerMember
    FormerMember

    Hello I am sorry you have had this experience but I too had more or less the same. I have had very little support and to be honest we managed a great deal on our own.

    Our District Nurse called every 2 weeks without fail with a smile and care and understanding.

    Hope things improve for you.

    I no longer have my husband he passed away 3 months ago. take care find some time for you. xx

  • FormerMember
    FormerMember

    Hi Diane

    im so sorry to hear you lost your husband. Thank you for your kind words, it helps to have people to talk to. Xx