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  • general update

    FormerMember
    FormerMember

    Dad say consultant yesterday and for once we had "good news". His blood count is holding and he is generally a lot better since being taken off the drug trial and put back on Sutent. Apparently there are 4 still on the drug trial for whom there has been "some" degree of improvement.

    Dad is now on sutent full time (no breaks anymore as they think its better) and seems to be coping so much better, not…

  • off drug trail

    FormerMember
    FormerMember

    dad has ben taken off the drug trail because he was suffering too many side effects, the consultant said that many of his patients on this trial were suffering the same and the benefits did not outway the side effects.

    we were originally told if he went on this drug trail there was no going back but evidently something happened because he has started back on sutent today.

    Although i am glad he will not suffer so much…

  • Here we go again

    FormerMember
    FormerMember

    Its that time of the month again when dad is going for a check up with the consultant. I know that it is necessary as he is on a new drug trial but i hate it, every month i feel scared, hopeless, helpless, hope for a miracle, fear of hearing those fateful words.

    Not helping is the fact that its coming up to Christmas, we got told the day before christmas last year that he had cancer and that surgery/chemo/radio were…

  • just want the world to slow down

    FormerMember
    FormerMember

    First time I've written one of these, just feel that there is so much i need to get off my chest but have no one to say it too!.  This time last year i was looking forward to Christmas oblivious to the fact my world would fall apart the day before Christmas when my dad was told he had advanced kidney cancer and the chances - 1 in 10. SInce then its been a roller coaster of no treatment available, then were lucky enough…