A trip with triple negative breast cancer

  • Serious adverse immunotherapy reaction - the outpatient phase

    It’s helping me to write this all down whilst it’s still quite fresh. I am discharged from hospital on the Friday evening. I am set up with 3 appointments in the acute oncology service - Saturday, Sunday, Monday morning, for IV steroids, ...
  • Serious adverse immunotherapy related event - the in patient experience

    As a brief recap, I am currently experiencing the (very low likelihood) downside risks of being treated with a PD-1 inhibitor. Essentially my immune system trying to wreck my previously healthy kidneys. As an aside, as I write this, the immediate cri...
  • Serious adverse immunotherapy event - the A&E story

    As a companion to my blog entry on what happened to me clinically, this is the story of how it unfolded as a hospital experience. This bit focuses on night 1 in A&E. At my hospital, oncology patients have a dedicated hotline, and there is an acut...
  • My serious immunotherapy related adverse event

    As a quick recap, I have PD-L1 positive, triple negative breast cancer, metastasised to my liver. I have been being treated with an immunotherapy drug called Pembrolizumab. In layman’s terms, our immune systems have an ability to deal with cell...
  • Planning for the future

    When I got confirmation in April that the secondary cancer in my liver was definitely back, I made an appointment with my solicitor to review and update my will, and also completed the forms to set up lasting power of attorney for my husband, son and...