A trip with triple negative breast cancer

  • Navigating the doldrums

    The majority of my blog entries have been about the procedures and treatments I have been having. As well as giving me an outlet to recap the history of this, I always hope they will help others facing similar things understand what is involved in so...
  • The steroid wean phase

    Tomorrow will be 3 weeks on from the emergence of my serious immunotherapy adverse event involving kidneys and thyroid. The management plan remains high dose steroids, weaned down over time, backed up by extra detailed renal tests from time to time. ...
  • The roller coaster of nephritis

    It’s two and a half weeks since I became aware I was having a serious adverse immune event to my kidneys related to my immunotherapy, a PD-1 inhibitor. I continue to try to do everything I can to manage myself to whatever is my best possible ou...
  • Serious adverse immunotherapy reaction - the outpatient phase

    It’s helping me to write this all down whilst it’s still quite fresh. I am discharged from hospital on the Friday evening. I am set up with 3 appointments in the acute oncology service - Saturday, Sunday, Monday morning, for IV steroids, ...
  • Serious adverse immunotherapy related event - the in patient experience

    As a brief recap, I am currently experiencing the (very low likelihood) downside risks of being treated with a PD-1 inhibitor. Essentially my immune system trying to wreck my previously healthy kidneys. As an aside, as I write this, the immediate cri...