A trip with triple negative breast cancer

Options

More Content

  • The steroid wean phase

    Coddfish
    Tomorrow will be 3 weeks on from the emergence of my serious immunotherapy adverse event involving kidneys and thyroid. The management plan remains high dose steroids, weaned down over time, backed up by extra detailed renal tests from time to time. ...

  • The roller coaster of nephritis

    Coddfish
    It’s two and a half weeks since I became aware I was having a serious adverse immune event to my kidneys related to my immunotherapy, a PD-1 inhibitor. I continue to try to do everything I can to manage myself to whatever is my best possible ou...

  • Serious adverse immunotherapy reaction - the outpatient phase

    Coddfish
    It’s helping me to write this all down whilst it’s still quite fresh. I am discharged from hospital on the Friday evening. I am set up with 3 appointments in the acute oncology service - Saturday, Sunday, Monday morning, for IV steroids, ...

  • Serious adverse immunotherapy related event - the in patient experience

    Coddfish
    As a brief recap, I am currently experiencing the (very low likelihood) downside risks of being treated with a PD-1 inhibitor. Essentially my immune system trying to wreck my previously healthy kidneys. As an aside, as I write this, the immediate cri...

  • Serious adverse immunotherapy event - the A&E story

    Coddfish
    As a companion to my blog entry on what happened to me clinically, this is the story of how it unfolded as a hospital experience. This bit focuses on night 1 in A&E. At my hospital, oncology patients have a dedicated hotline, and there is an acut...
Help us do whatever it takes, because we’ve never been needed more.

© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007