A trip with triple negative breast cancer

  • First puff of the trade winds

    Today is the first day I have had good news for quite some time.  First, and to my surprise, the MRI report from last Thursday evening is back in, and it shows all my liver mets have reduced, with no new lesions formed anywhere in the liver. Sec...
  • Still waiting for a trade wind to arrive

    I am, as my consultant said last week, ‘stuck’. The creatinine level is stubbornly stable at around 1.75 x my previous baseline. Whilst there might be some further small improvement, it looks like that may be my permanent new normal. I am...
  • Navigating the doldrums

    The majority of my blog entries have been about the procedures and treatments I have been having. As well as giving me an outlet to recap the history of this, I always hope they will help others facing similar things understand what is involved in so...
  • The steroid wean phase

    Tomorrow will be 3 weeks on from the emergence of my serious immunotherapy adverse event involving kidneys and thyroid. The management plan remains high dose steroids, weaned down over time, backed up by extra detailed renal tests from time to time. ...
  • The roller coaster of nephritis

    It’s two and a half weeks since I became aware I was having a serious adverse immune event to my kidneys related to my immunotherapy, a PD-1 inhibitor. I continue to try to do everything I can to manage myself to whatever is my best possible ou...