i feel so scared.

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Hi, i am grace,56, sole carer to 2 of my adult children who are autistic.
I am feeling drained and scared.
Been unwell for a few months. Went to a&e in July with unbearable lower left sided pain. Was discharged with a CT appointment and a possible Diverticular Disease diagnosis. CT scan confirmed this plus a small hernia. But then 2 weeks ago had a postmenopausal bleed. GP put me on 2 week pathway. Went for first appointment today. Alongside worrying features picked up in my womb, (11mm? and a polyp) apparently CT scan, re confirmed by ultrasound today, I have a worrying 10cm cyst on ovary. (That no one had followed up on after CT scan)
This probably explains all the symptoms I put down to Diverticular Disease, bloating, pain etc. Anyway clinic very concerned so appointment made with consultant next Thursday to discuss next steps. today i had ultrasound scan, pipelle biopsy and blood tests.
I feel sick, I want to feel brave enough to fight this but at moment its to raw.
I have never had an operation before so that in itself is scary but the thought of it being cancer is terrifying me. And possibly 2 types! Obviously it may be neither but my brain is in overdrive with the possibilities.
We had a holiday planned for December, will have to cancel and then make decisions on next year's holidays Based on what happens next few weeks.
Grace
  • Hi Grace

    Welcome to the Womb group.

    I am sorry to hear that you have been feeling unwell for a few months and that you have recently had a post menopausal bleed. I understand that it is a worrying time.

    I personally found that it felt worse going through the diagnosis with all the waiting and uncertainty, than actually getting the diagnosis. Once I knew for sure what was going on and how it would be treated things felt a bit more in control. 

    A endometrial lining of 11mm post menopause is considered a little thicker than they would like and it is normal for the hyperplasia to have the further testing ie biopsy. There can be different types of hyperplasia- some are less concerning than others. What they are doing with the biopsy is trying to rule out cancer as a potential cause. 

    Polyps are not unusual and some may contain some cancer cells but equally some may be benign. 

    If the biopsy results confirm cancer is present then early stage endometrial cancer is normally a very treatable cancer. Most ladies are offered a hysterectomy where it is medically possible. If one is needed then for most people on here, myself included, the hysterectomy includes womb, cervix, fallopian tubes and ovaries. If the cyst that is shown on your ovary therefore needs to go then it would likely be done as one surgery. 

    I was scared at the thought of surgery but I found it straightforward, I had little pain, was in hospital for one night only and recovered well. 

    As you have had a CT scan it sounds as if the appointment next week will be one where they confirm what has caused your symptoms and what may need to happen. They always try and rule out the most serious potential causes first which is why they do things quickly. The blood test is likely to have been a general blood test to pick up on anything amiss but normally they also test for the level of CA125. It is a marker that neither diagnoses or rules out cancer but is helpful in deciding where there is a need for further investigation. 

    It may well be that there are alternative causes for your hyperplasia, polyp and cyst and if cancer is ruled out first then they can discuss whether alternative treatment is needed. This could be surgery, hormonal treatment eg mirena coil or possibly even monitoring with repeat scans etc. 

    The important thing is they find out was is going on and then they can work out the best possible treatment. 

    I understand it is hard to wait for these results so if talking things through would help, please do give the Macmillan Support Line a call. They are there from 8am-8pm every day. 

    I wish you well for your appointment and hope that you will soon know what your next steps may be. In the meantime we are here if you need us. 

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm