Hi all,
I am new here, and although I frequent other website forums, I don't normally post. I haven't read many of the messages here yet, but plan to. I thought I would jump in and introduce myself first.
I'm 49, Lynch Syndrome positive - just found that out in January of this year. Background: I had a polyp removed in 2020 which was benign. It was then suggested I go on HRT, which I did. A new polyp was found last month during an impromptu internal ultrasound to prepare for a preventative hysterectomy due to Lynch and family members who have had womb cancer. I suppose I should not have been so surprised another polyp was there - but I was, because I had had ultrasounds (external) as recently as last year and all seemed normal. The biopsy came back as positive for cancer, but I won't know anymore until after my hysterectomy.
My hysterectomy is in 2 weeks. In addition to lynch, I have a congenital platelet disorder which makes me prone to bleeding. Thankfully I have a haematologist and they are in the loop, and preparing for this. I also have asthma - usually allergy induced, but recently I have had irritation causing me to cough daily. It feels like asthma, but I mentioned this during my recent diagnosis and that it scared me, so I was given a chest x-ray. I am worried that it isn't asthma, but also worried if it is (in addition to other things) about asthma / coughing during post-op recovery. I also seem to have a constant low heart rate and low blood pressure. My mother seems to have this too and recently had a pacemaker inserted. Other recent family tragedies on top of this have me reeling, and where as normally I would not look for support, I feel like I need it now.
I don't expect answers to any of my worries, just needed to talk about it somewhere. I have really appreciated the insight and solidarity that I have found in reading posts elsewhere on other subjects - and I am sure I will here too. I also want to possibly be some comfort for someone else who has other health conditions complicating their cancer journey, showing that they aren't alone.
Hi Bluegreen23
Welcome to the Womb group.
I am sorry to hear of your diagnosis of womb cancer and please do use the forum to talk whenever you need to. You are also welcome to give the Support Line a call if you feel that chatting to someone would help. The number is below.
I am sorry to hear of all your other things that you are trying to deal with as well. It does seem that your medical team are looking after you well.
I am also asthmatic and often find this time of the year (hayfever time) that I do cough and need my inhaler more often. It may be also- if you are like me- any extra stress/worry can cause it to slide a bit. It maybe worth asking your doctor whether you may need to increase your preventer inhaler dose? My asthma did not cause any issues with the general anaesthetic or my recovery so as long as they are aware of everything- and they are- then it can be managed.
The testing they do before surgery is always a provisional idea of stage/grade etc of cancer but it is always the post op results that are the important ones. Mine came back at around 3 1/2 weeks post op.
Having a diagnosis can be a scary time and it can help to have a bit of information so I will pop a link below to some that you may find helpful.
Womb cancer booklet | Macmillan Cancer Support
I wish you well for your hysterectomy in 2 weeks and in the meantime if there is anything you need, you know where we are.
Jane
