New here and have a question

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Hi all, 

I was diagnosed with endometrial cancer in November and had a hysterectomy including tubes and ovaries in December. I was told I didn’t need any further treatment and will be reviewed yearly for 5 years. A nurse is going to call me this week to tell me things to look out for between appointments. 

I feel very lucky it was caught early and don’t need any further treatment so I feel a bit guilty being here when people are so much worse off. But I have developed the most terrible health anxiety. I have a chronic health condition anyway and am now also going through the menopause. I’ve become hyper vigilant about my body and worry about every little discomfort. I’ve started having panic attacks. 

I feel so ridiculous when I have been told I’m ok. Has anyone else experienced this and how long did it last. I’m wondering if I’ll improve when the nurse gives me things to look out for and I can stop thinking everything is a problem. Would love to hear from people who have overcome this. 

Thank you. 

  • Hi there, I’m in a similar position although I’m only 7 weeks post op. Like you I don’t need any further treatment just awaiting my genetic results. I feel guilty when I read others experiences on here. I feel like I’m questioning my health and whereas before my husband and I would be booking holidays I feel nervous to do so. 
    I am hoping this will change as time passes. I go back to work in 2 weeks and perhaps once I’m occupied more this will help. 
    I was told to start journaling on my diagnosis and this has helped me get my feelings down and I have daily walks with music which also helps me clear my mind. 

    well done on getting through this and I’m hoping there are brighter days ahead 

  • Hello

    I am glad that your cancer was caught early and that there was no need for further treatment. There is no need to feel guilty and you are welcome to post here as much as needed. 

    Feeling anxious after going through cancer and it's treatment is totally normal. It's natural to become more aware of our bodies. 

    I still am more aware of any aches and pains and I suppose in a way it is keeping us safe as if something does crop up, we are more aware and will do something about it. 

    I think it will help a bit when you have spoken to your nurse and she has gone through what to look out for. Although your checks/reviews are once every 12 months, it does not mean to say that you can not contact your CNS with questions/worries before hand. I expect you will be given an email address or phone number. You can also give the Macmillan Support Line a call and they will help. 

    I recommend having a look at the Macmillan Hope course. I did it myself and found it helped with the worrying. 

    Online HOPE programme for your patients | Macmillan Cancer Support

    With regard to the nurse calling you and giving you things to look out for- I will attach one of my blogs and it goes through the questions/signs that you will need to be aware of. 

    (+) Check-up appointments after endometrial cancer treatment- Jane's story - Macmillan Online Community

    We also have another forum on here that may be helpful.

    (+) Life after cancer forum | Macmillan Online Community

    Hope this helps a bit. 

    if there is anything else you need, you know where we are.

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi, I'm having symptoms and get my scan tomorrow, reading your post I wanted to say I too have chronic illnesses and going through menopause also and yes I get anxious when it comes to my health, but when it became an issue I decided to contact my Dr and referred myself to talking therapies & this helped me alot, it's surprising how you can change your chain of thought. Don't ignore the anxiety when it comes along, when your having thoughts, question these thoughts with a realistic answer. My main helpful thought was " I can not predict the future" (wouldn't it be great if we could lol). Please look into talking therapies before your anxiety becomes too much, once you get an understanding of how to combat the thoughts, things will get much better within a month or so as it's not a quick fix but very much worth it.

  • Thank you for responding. Sorry you too are anxious. Journalling sounds like a good idea as it’s easy to get everything swirling round in my head. I hope you manage to get on holiday soon!! x 

  • Thanks so much for the additional information. It’s good to know I’m not alone in being hyper vigilant about my body. I will join the other groups you have recommended. I am looking forward to speaking to the nurse and things hopefully getting better x 

  • Thank you for your reply. I hope your scan goes well. I have had some CBT in the past so maybe time to revisit. I’m usually so good at living in the moment and not worrying but this has taken me by surprise. If it doesn’t get better after my call from the nurse I’ll definitely take your advice and talk to my doctor x 

  • It’s reassuring to hear other people suffering with anxiety  I’m 3 1/2 weeks post hysterectomy . Still no results so no idea of next steps . Physically improving but have developed really bad anxiety not just about my health but worrying about a myriad of things with family . I’m also getting intermittent light headedness and now wondering if this is linked to the anxiety . I’m seeing GP tomorrow for a cancer care review so hoping I will get a chance to talk through these things. I too am keeping a journal so can write down worries as well as the positive things . I’m also getting frustrated at not being able to physically do stuff , sat in garden today as husband prepped my sweet pea beds which I would normally have  done by now .  Anyway best wishes to everyone and onwards and upwards . 

  • So happy for you that you do not need any further treatment..

    I was diagnosed last April ..hysterectomy in July both  tubes cervix ovaries surrounding tissue all  removed ..

    I think it normal to feel the way  you do ..I am the same..although our circumstances are different I had to have further treatment radiotherapy and chemotherapy I  rang the bell in January..

    I suffer greatly  from anxiety every pain and grumble is an issueb ..its all about getting to know your new normal ..

    Taking one day at a time..and trying not to over think things .. 

    Never feel guilty about being in the group ..

    Wishing you well ..

  • I joined the online Hope Programme and have benefitted. I really like that I just do it as and when it suits. It made me feel like I was doing something positive for my wellbeing. 

  • I'm glad you are liking it. I found it really helpful and it is convenient that you can just dip in and out of it when you want to. 

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm