New to group

Hi Jet1

Bless you most of us in this group will be able to empathise with how you’re feeling at then moment. It is a very scary time! My advice would be to keep an open mind when you go to the appointment. Most have us have felt less anxious when we actually know the results. Once you know what you are dealing with whether it’s cancer or not you will be able to make a plan and things will settle a little. I took my son with me when I got my results and he was able to take notes of what was being said so that I didn’t forget anything or muddle things up in my mind. Good luck for today and let us know how you are doing. There is loads of support available from this group of ladies.

Linda xxx

Hi Jet1

Welcome to the Womb group.

I am sorry to hear that you have been undergoing testing and remember how worrying it was. 

It is good that you are having someone with you for the appointment today- I often found that I didn't take it all in and sometimes my mind would go blank when I got there. 

If it does turn out to be cancer then early stage endometrial is a very treatable cancer. And we will be here to support you. The Support Line is there as well if you need to talk things through after your appointment. 

Good Luck for later

Jane

Hi Lin0506 and Jane 2511

Hello Both,

Thank you so much for your kindness, comforting words and tips.

I took my family to my appointment yesterday and it was a great help. They were both able to recall parts of the conversation from the consultant that I had not taken in.

So after receiving my diagnosis of endometrial cancer, I am awaiting my MRI and treatment plan, which has been suggested as full hysterectomy.

Knowing does help and I can somehow approach the situation with less fear and determination.

The consultant was kind and empathetic and that really helped.

I am so grateful to be part of this group and the support receiving.

Thank you both so much for your time to reply.x

Hi Jet1 
I too took family to my appointment and my very efficient daughter took notes. I had a diagnosis of endometrial cancer last August and had a full hysterectomy. I didn’t need any further treatment. I found all the medical professionals I came into contact with so kind and knowledgeable, that I quickly learnt to put my trust in them. I recovered very quickly from my operation, but as I live alone I set up a rota of visitors so that I had someone popping in each day for 2 weeks, either for company or to help with the odd household chore. Everyone was so kind and more than happy to help. 
 I hope your MRI goes well. Once you get a treatment plan you will hopefully feel more in control. For me the anxiety of not knowing what was going to happen was the worst part. 
Good luck and keep us updated on here if it helps! 

Hi Jet1

Am sorry to hear that you have had a diagnosis of endometrial cancer. I found in a way it felt better to know for sure than the waiting and not knowing.

The scan is the normal next step and is to check exactly where the cancer is so they know how best to treat it. As you say, most ladies (where medically possible) are offered a hysterectomy as the first line of treatment. After surgery everything that is removed is sent to pathology and it is these results that determine whether the hysterectomy alone is enough or whether any further treatment may be recommended. 

They normally try to do a laparoscopic hysterectomy where possible. Mine was in April 2022 and it was a straightforward procedure. I went home the following day and had little pain. I recovered quickly. 

You will be given a cancer nurse specialist and they will be your first port of call with any worries. What I would expect to happen now is that you will have your MRI fairly quickly and once the results are back from that you are likely to be given an appointment to see your consultant to discuss treatment. For me it happened pretty quickly. 

This link will take you to some information that you may find helpful if you have any questions once you have time to process today. 

Womb cancer booklet | Macmillan Cancer Support

We also have the Support Line available if you feel at any point you need to talk things through. Your family are also welcome to call. 

If there is anything you need or want to ask about, please do so. We are here to support you.

Jane

Hello wiseowl 2,

It has been of great comfort to hear of your journey and the support that you received.

I am doing all I can to keep the worry of out of my mind and keeping as busy as I can. 

I cant believe has fatigued I feel so quickly. I am usually an active runner and walker. To do something more gentle I've started to do some light gardening and taking great pleasure in seeing my plants grow.

It's a great idea to get more help in the house though. From your tip Ive set up a little task rota with my family and this has helped with the tieredness.

Thank you for taking your time to reply to me.

Wishing you all the best.x

Hello Jane 2511

Thank you so much for explaining the next likely steps to me.

It's of comfort to me to hear direct from someone whom has been through the same.

Ive found the links that you have given really useful too.

I was all geared up for my next step, the MRI, this afternoon. I then got a call to cancel as the machine had broken.

I will be sure to keep you posted.

Take care and thank you for all you do as a Community Champion. 

Oh no, how frustrating for you, hopefully you will get another MRI quickly. Just to add what others have said, for me, the worst bit was the not knowing, getting tests etc. as soon as I knew what was what, and had a treatment plan things became more manageable. 

Hi I was diagnosed in Jan with endometrial cancer and I am now nearly 4 weeks post op and I feel I am recovering well. I found out last week that I do not need any further treatment and I go back to a nurse led clinic in 3 months. 
it really is a journey for all of us. 
sending you love 

Hi Jet1, welcome to the group, and to this emotional roller coaster ride! I was diagnosed in November 2021 and had my hysterectomy in January 2022, and remember well all the ups and downs, lows and lowers, all the waiting and wondering, but also wIll always remember how super this group was, as was also my CNS team. I found that one of the benefits of belonging to this group was that I could draw encouragement from the fact that everyone on here was either going through a similar experience or had gone through it. I was given my diagnosis by phone, as it was only just post lockdown and some safeguards/restrictions were still in place. I had an MRI and chest X Ray a week after diagnosis, and then went in for a face to face appointment with the consultant for the results. My MDT (Multi Disciplinary Team) - - - University Hospital Southampton - meet on a Friday morning, so I got my hysteroscopy and MRI results on a Friday late morning. If you’d like to read my story, you can click on my name and read my bio. You can do this! 

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