Hello, in Aug 2024 I had *very* slight spotting that I blamed on hormones, uti, etc but went in and Dr immediately suggested a biopsy. Results came back w/ an aggressive grade 3 endometrial cancer. From there I thankfully had a family member on/gyn who facilitied a CT scan w/ contrast, bloodwork and aCA125 test. Armed w/ the basics we were able to have everything the gyn oncologist needed at the initial consultation to proceed w/ surgery immediately vs him ordering all those tests at the consultation. Complete hysterectomy (including the omentum) was 9/11 at the Mayo Clinic and final surgical pathology was serous/clear cell mixed grade 3 stage 2C (new staging in the US - prior to 2023 stage would have been 1a). Treatment consisted of 6 carbo/taxol infusions once every 21 days and 5 brachytherapy radiation treatments. In addition to the above I have chosen to be monitored via Singatera testing that measures circulating tumor DNA specific to your exact tumor sample. Singatera can pick up a potential recurrence up to 1.5 years before a CT scan. I’m also pursuing molecular testing via Caris. Best wishes to all in your healing journey!
Hello Ebeth
Welcome to the Online Community and the Womb group.
I am sorry to hear of your cancer. I also had a grade 3 cancer and had surgery, followed by carboplatin/paclitaxel chemo. I did not have the brachytherapy but had 25 sessions of external beam radiotherapy. I have recently finished 2 years of check ups, every 12 weeks and I am now on patient led follow up.
The singatera and Caris sounds interesting. It is not something I have heard of in England.
I hope that you are recovering from your treatments and remain well.
Jane
Hi Lemonpip
I am sorry to hear of your diagnosis of endometrial cancer.
There can be a variation between hospitals. If you click on my name my profile will come up and show timings.
For most ladies the first line treatment would be a hysterectomy. Mine was a month from my first symptom. I would expect you to be given a date following on from what the MRI shows. In my experience scan results were back within a week so I would think that it would be towards the end of March beginning of April for you- but very much depending on how busy your hospital is.
I am sorry to hear that your husband has had spinal surgery and hope that you can get a care package sorted for him quickly. To give you an idea of what is ahead- my surgery was laparoscopic and the recovery went well. I was in hospital for one night and had little pain. I had to be careful with lifting anything heavy and also found twisting movements uncomfortable. Although I did need to rest each day, I was also able to go for short walks straight away.
I was able to walk around within a couple of hours of surgery. At home I would rest on the sofa with my legs up and then move around once every hour. I was able to do most things- but not anything heavy. Gentle housework was ok but not hoovering. Within a week I felt recovered enough to walk to the local shops with family who carried shopping home.
I found lose, comfy clothes more comfortable and nothing tight around my tummy.
With your husband I would suggest that you just keep everyone informed as and when you have timings and hopefully it can all be sorted in time for you both.
Good Luck
Jane
Stairs weren't an issue. Just took them slowly for a few days- more nervous than anything else.
