New to this group

Hi Tacky38, so sorry to hear your news. I can completely relate to how you are feeling, as I was having issues with sleep/insomnia before I started my cancer investigations, and lack of sleep is debilitating.  For me the worst part of my cancer journey to date, was the time where you are now, having the tests/scans waiting to hear the outcome and plans. Everybody said it would be easier once you know what’s what, and I didn’t quite believe them. But once I knew, it did become easier. Don’t worry about having a rant, this is what this forum is for, amongst other things. Wishing you well for Wednesday.

Hi Tacky38. I’m so sorry you’re going through this. Most people on here will tell you that this waiting period is the hardest part. Your mind runs away with you and I remember spending hours on Google searching for answers. (Not advisable as Google can be out of date and doesn’t know your specific medical history and circumstances.) Once you know what’s happening treatment wise, you’ll feel a bit less anxious hopefully. For me, the uncertainty of not knowing what was going to happen next caused me huge anxiety as I felt so out of control. Once I had a treatment plan, I tackled each procedure one at a time and tried to think of it as each one was moving towards getting better. 
Hopefully, like I did, you’ll meet some caring, skilled and knowledgeable medical professionals who will hold your hand through all of this. Good luck for Wednesday. Keep us updated on here if you feel you can. X

Hi Tacky38

Welcome to the Womb group. I am sorry to hear of your diagnosis and understand that it is a worrying time.

Not long to wait now until you see the consultant and hopefully have a plan put in place. 

The medical terminology can be confusing. But from my understanding through my own cancer and also being on here it seems that the scans have shown that it is an early stage cancer- so stage 1 if it has remained within the womb or stage 2 if the cervix is involved- so basically either way - it looks contained/early stage.

It seems that they are unsure at the moment whether the cervix is involved as part of the endometrial cancer or whether it is a separate cancer- they are planning to discuss this in a MDT meeting and may want to do more scans. 

Either way- the normal next steps would be a hysterectomy where medically possible and for many ladies they try to do this via key hole. The surgery would likely be the same for both scenarios. 

With grades - there are 3- grade 1 is the lowest and grade 3 is the highest. The grade describes the type of cancer and how it may act whereas the stage is where the cancer is. Before surgery a provisional stage and grade are given- and I would expect you to get this at your appointment- and after surgery post op pathology with give a firm stage and grade (after a closer look) It is the post op results that would normally be used to decide whether any follow up treatment is needed. For some ladies surgery alone is enough. 

This link may help with any questions you may have. 

Womb cancer booklet | Macmillan Cancer Support

I know it is hard at the moment and you probably have lots of worries but I found once I had seen the consultant and had a firm plan- I felt things were more in control. They also moved forward quite quickly.

It sounds like you are having a tough time at the moment- and although it is good that your GP has prescribed some medication to help- if you feel like talking things through would help then please do give the Support Line a call. They are lovely on there.

Good Luck for next week. In the meantime if there is anything you need or want to ask about, please do so.

Jane