New here and very scared

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Hi I’m 62 and have been diagnosed with class 1 womb cancer non aggressive I’ve had my mri scan and am waiting for the results this week I’m terrified it in my womb lining and lymph nodes and that I’m going to die is there life after this I live alone and find sleeping really hard my 2 kids are supporting me but they’re busy people and I do feel alone I never thought this would happen to me.

  • Hi welcome to the group! Totally understand that you’re scared, but there’s definitely life after this. I was diagnosed at the end of November last year. I had a hysterectomy in January for stage 1b cancer and had 25 sessions of radiotherapy as ‘belt and braces’ now doing great. I’m sure you’ll feel a little better once you get the results of the MRI and you know the plan. There are lots of us on here you are going through this or been through it, and understand. Xxx

  • Hi TraceyA, so sorry to hear about your recent diagnosis. I found the time waiting for the MRI scan and results the worst! After my hysteroscopy I too was told I had type 1 cancer, less aggressive, and this is what I held onto whilst waiting for the results.
    You will get through this! I was diagnosed end May, had my op in June, confirmed type 1, stage 1A and no further treatment required. It was a massive shock for me too - if you click on my name you’ll see my journey. Just take 1 day at a time and try not to worry too much (easier said than done, I know!). In a few days you’ll have more information and a treatment plan shortly thereafter.

    Let us know how you get on and if you have any questions? Thinking of you in the meantime.

  • Hi TraceyA

    Welcome to the Womb group. I am sorry to hear of your diagnosis and it is very understandable to feel scared. I know I was. 

    it is normal to have a scan after diagnosis and it sounds promising that yours is a non aggressive type. The scan will help them work out exactly where the cancer is and how best to treat it. It is tough waiting for the results and I think all of us on here understand that. Low grade womb cancer tends to grow slowly and is usually very treatable. 

    In my own case, my cancer was high grade but I am doing ok at 2 years post treatment.

    Most ladies are offered a hysterectomy and for some low grade and early stage cancer this may be enough. Some people do need a bit of follow up treatment. 

    Hopefully your MRI will confirm that the cancer is still at an early stage. if talking things through would help, then please do give the Support Line a call. 

    I hope that your MRI results come back quickly but in the meantime if there is anything you want to ask, please do so. 

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi Tracey, 

    as you can see there’s lots of us and we are out the other side! I completely understand your loneliness ..even though I have someone at home, I still felt alone .. it’s natural it’s about your journey your body. I waited 6 weeks for surgery it was tough an overwhelming time. But my doctor, this forum, Maggies cancer centres, you can just drop by and talk and others, helped me to share, cry etc. I was in shock and also denial. Just go with the grief. 

    like you I had the same diagnosis which was the same after surgery so  no treatment . I’m still recovering 4 weeks later but my menopause symptoms night sweats and hot flashes have been through the roof ! x

  • Hang in their Tracey - this journey is quite a mind-messing one! I hope you get your operation soon and reassurance that there is no spread x