New here and very scared

Hi welcome to the group! Totally understand that you’re scared, but there’s definitely life after this. I was diagnosed at the end of November last year. I had a hysterectomy in January for stage 1b cancer and had 25 sessions of radiotherapy as ‘belt and braces’ now doing great. I’m sure you’ll feel a little better once you get the results of the MRI and you know the plan. There are lots of us on here you are going through this or been through it, and understand. Xxx

Hi TraceyA, so sorry to hear about your recent diagnosis. I found the time waiting for the MRI scan and results the worst! After my hysteroscopy I too was told I had type 1 cancer, less aggressive, and this is what I held onto whilst waiting for the results.
You will get through this! I was diagnosed end May, had my op in June, confirmed type 1, stage 1A and no further treatment required. It was a massive shock for me too - if you click on my name you’ll see my journey. Just take 1 day at a time and try not to worry too much (easier said than done, I know!). In a few days you’ll have more information and a treatment plan shortly thereafter.

Let us know how you get on and if you have any questions? Thinking of you in the meantime.

Hi TraceyA

Welcome to the Womb group. I am sorry to hear of your diagnosis and it is very understandable to feel scared. I know I was. 

it is normal to have a scan after diagnosis and it sounds promising that yours is a non aggressive type. The scan will help them work out exactly where the cancer is and how best to treat it. It is tough waiting for the results and I think all of us on here understand that. Low grade womb cancer tends to grow slowly and is usually very treatable. 

In my own case, my cancer was high grade but I am doing ok at 2 years post treatment.

Most ladies are offered a hysterectomy and for some low grade and early stage cancer this may be enough. Some people do need a bit of follow up treatment. 

Hopefully your MRI will confirm that the cancer is still at an early stage. if talking things through would help, then please do give the Support Line a call. 

I hope that your MRI results come back quickly but in the meantime if there is anything you want to ask, please do so. 

Jane

Hi Tracey, 

as you can see there’s lots of us and we are out the other side! I completely understand your loneliness ..even though I have someone at home, I still felt alone .. it’s natural it’s about your journey your body. I waited 6 weeks for surgery it was tough an overwhelming time. But my doctor, this forum, Maggies cancer centres, you can just drop by and talk and others, helped me to share, cry etc. I was in shock and also denial. Just go with the grief. 

like you I had the same diagnosis which was the same after surgery so  no treatment . I’m still recovering 4 weeks later but my menopause symptoms night sweats and hot flashes have been through the roof ! x

Hang in their Tracey - this journey is quite a mind-messing one! I hope you get your operation soon and reassurance that there is no spread x

Noodle Doo - I can offer some hope for the hot flashes - after my op in June I was getting them regular as clockwork every hour day and night(!). They have slowly settled and I’m only noticing a small number a day now, nowhere near as intense and am sleeping better!

Thanks Vixx,

is that over 5 months ? It makes me feel so disorientated and besides myself .. nights are so bad from a burning fire to skin having cold chills .. burning hands and feet and my veins pop out .. I don’t sweat as a rule so it super heat. I’m going to a menopause clinic Friday, my surgeon said it would be fine to take a low dose of HRT if I want. Not sure yet, although there is a new medication unavailable as yet on NHS, which is recommended purely for vasomotor issues. 
I don’t think I can wait any longer it’s been so debilitating.. I had my surgery nearly 5 weeks ago. 

It sounds like you’re having it worse than I did tbh. Immediately after my op I wanted to go back on HRT as the flushes were really impacting my sleep and the surgeon said I could if I really wanted but I got the impression it wasn’t recommended and on further thinking (and feedback from this forum), I ended up going without. I have been taking a calcium, magnesium and vit D supplement instead. The CNS said there was a seed in your ear therapy available if I wanted, but I didn’t go down that route. Good luck at the clinic on Friday, hopefully they might have some additional suggestions for you and you’ll feel better soon!

Thanks I’ve been taking the same not really helping, hopefully I’ll try something else or they go away real soon. I’ve had some tummy discomfort soreness and pain by my pubic bone, spoke with the CNS and she thinks it’s early days but I didn’t feel reassured. I think I expecting to be a lot better than I am by now. Tummy gets so bloated and my bowels have had a bad attack if diarrhoea at night and then I went at 3.30am . So I feel so out of sorts.