Hi, i have just joined this group as i found out that i have endometrial cancer last week. I started bleeding heavily in February 2024 and went for a scan which showed a poylp. I then waited 17 months for an appointment with a gynaecologist. They removed the poylp, inserted a coil and done a biopsy. The doctor called me on 1st august to tell me i have cancer and its now 8 days later and i haven't heard from him or anyone else since. I feel like I've been left in limbo fearing the worst. I am 41 years old with 2 girls aged 5 and 2 so obviously very worried. The waiting is the worst. I was wondering how long everyone else had to wait to get an mri? And had anyone else got a poylp that turned to cancer. I'm worried that the long wait will turn out to be bad.
Hi Lou
I am sorry to hear that you had to wait so long to get your gynaecology appointment. It sounds like it was done on a routine referral rather than at the time meeting the criteria for an urgent cancer referral.
I remember it taking a couple of weeks from hearing I had cancer to anything much happening. What I didn't know at the time was that I was discussed at the Multi disciplinary team meeting (which happened once a month) and they were coming up with the treatment plan.
I would expect you to have either a CT scan or MRI scan (sometimes both) within a couple of weeks and they will do that to provisionally stage the cancer. To chase it up I would suggest contacting your GP to see what happens now. I contacted my own GP after diagnosis when I had not heard anything and they contacted the hospital directly, spoke to the consultant and got me an appointment the next day- a Friday. I had my pre op appointment that afternoon and my surgery on the Monday. Once they have all the information needed- it can move quite quickly.
My GP was always sent any results, letters etc electronically and would often get them around a week before me- so it is well worth contacting them.
I can understand your concern about it taking a long time. Endometrial cancer can be a slow growing cancer, especially when it is a lower grade. (type) Endometrial cancer caught at an early stage is often a very treatable cancer.
For most ladies where medically possible a hysterectomy is offered. There can sometimes be a hormone treatment used and this may be the mirena coil or sometimes hormone tablets.
Sometimes cancer can be contained within a polyp. They would also have done the biopsy of your womb lining to check for cancer there. If the cancer is completely contained within the polyp then this would be considered to be an early stage cancer. If the cancer was also within the lining of your womb but contained then this would also be considered early stage.
I know it is a worrying time so please do give the Support Line a call and talk to one of the nurses if it would help.
I would then contact your GP surgery first thing Monday morning and ask for an update as to what happens now and to ask them to chase up an MRI/CT
Good Luck
Jane
