Time scale from diagnosis to operation.

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Hi

I joined a few weeks ago, have been reading the forum and peoples stories. First posting for me but have found information on here and the support everyone gives a great comfort as it’s very daunting when you hear the word cancer. 

I was on 2 week referral after post menopausal bleeding and had my appointment for hysteroscopy and biopsy 16 April. It was found I had a womb lining of 19mm and polyps. I didn’t think I sounded good which was confirmed with a confirmation of womb cancer on my follow up appointment 30 April and was told I would need total Hysterectomy. Blood tests were done after a cup of tea and chat with specialist nurse the same day. I had Chest Xray done 10 May and should have had MRI on the 11 May.

Unfortunately this was cancelled but they rang on the Monday and I had it on 15 May so results would be available for MDT which was last Monday, 20 May. I received a securely emailed letter confirming my appointment to be seen by specialist and assessed for surgery. That appointment is 17 June which just seems a bit of a gap as everything else has happened pretty quickly. 

Just wondering what other people’s timeline was for treatment from initial appointment when biopsy was taken to operation. 

Sorry for the long post xx 

  • Hi Mandrix4

    Welcome to the Womb group.

    I am sorry to hear of your cancer diagnosis and remember what an anxious time it was when I had mine. If you click on my name, my profile will come up and it will show the timeline from diagnosis for me. 

    It is hard when you are waiting and I remember once being told, I just wanted the surgery done. For me it was exactly 4 weeks from having the first bleed to having the hysterectomy. My first appointment with the consultant was on a Friday and I had the preop on the Friday pm. On Monday I had the surgery- so you may well find that once you have seen the consultant, that things move quickly. 

    I will pop a link here to some information that I found helpful at your stage.

    Womb cancer booklet | Macmillan Cancer Support

    In the meantime, if there is anything that you need or want to ask, please do so. There are a lovely bunch of ladies on here who will want to offer you support. If at any point talking things through would help, then please do give the support line a call. The number is below and they are lovely on there. Sometimes it can all feel a bit overwhelming and it does help to talk to someone.

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi Jane

    Thank you for your reply. Have read your profile and good to see that they are happy with your progress but sorry to hear you have ongoing problems of the effect of the follow up treatment. 

    4 weeks from first sign to operation was very good. 

    Thanks for the links and the advice. Having read many of the threads on here I already feel calmer knowing how well others have got through this. Best thing I did looking for a forum where you get the right and true information from people who have taken this journey before you. 

    Mand 

  • Glad it helped. We understand because we have been through it. If there is anything you want to ask- someone will always get back to you. 

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi

    I am  sorry to hear of your diagnosis.  Waiting to hear results or find out next steps is never easy.  My timeline is in my profile, I had a bit of a delay due to Christmas and my hysterectomy was slightly later than the consultant was aiming for, but all went very smoothly on the day. I used the time before my operation to prepare for after I came out of hospital it helped me to do something practical. 

    I hope all goes smoothly with you too.

  • Hi

    Thanks for your reply. I have read your profile and we are of s similar age. I didn’t have any symptoms other than a slight post menopausal bleed which is scary when you find out you have cancer. 

    Looks like our timescales may be similar. I am sure once I see the oncology specialist everything will happen quickly. 

    Hope your follow ups are positive going forward

    xx

  • Like you I had very slight bleeding and almost didn’t make an appointment with the GP and was taken aback when they referred me to the hospital - I thought they were being over cautious! I feel very fortunate to have had such swift and excellent treatment at my local hospital and at the  specialist cancer centre. Everyone I met has been so very understanding and patient with their explanations. And I have found reading the experiences and useful tips on this forum really helpful. 

    Take care hopefully the time won’t drag too much until you see the consultant.

    x

  • Yes, the scary thing is without the bleed how long would we have been going about life without a care? All other medical checks I have done but there is nothing for this really until you show some signs of a problem. I have noticed in the last few days one of the radio stations have been playing adverts regarding womb cancer, the warning signs and to see the doctor which is great. 

    I will keep busy with work and a short trip to Whitby before my appointment. Something to look forward to.

    You continue to take care of yourself xx

  • Hi Mandrix4, welcome to the group and to this rollercoaster ride! I saw my GP in September 2021 and was put on the 2 week pathway. I had my TVS within a week and my hysteroscopy the week after but it failed and I needed to wait a few more weeks and have it under general anaesthetic. I was diagnosed end November and had my hysterectomy 22/01/22, so just under two months from diagnosis to op. 

  • Good evening and thanks for your reply. 

    When I went for my first appointment I had a TVS first and then saw a specialist who said due to the thickness of the womb lining I needed a hysteroscopy and could they do one there and then. I gave permission and they found polyp and did a biopsy. 

    Where I live, Sheffield, the NHS are Teaching hospitals and seem to get things done pretty quickly for which I am grateful. 

    I think the timeline will be similar to you from diagnosis to surgery. Mixed emotions really, I want the operation out of the way but not looking forward to it. I have had eye surgery for Glaucoma which was very straight forward whilst awake. Never had general anaesthetic or any major surgery. Reading other’s experiences makes it a bit easier to face. 

    Wishing you well going forward

  • Hi again, my investigations and surgery (and adjuvant treatment) was at UHS - University Hospital Southampton - and waiting times are typically short. I’d had a general anaesthetic for a caesarean section back in 1989 so it wasn’t quite so scary for me. Something I found reassuring was to remind myself that, whilst this was a major event for me, it was an everyday “day at the office” for my surgeon. Is your surgery expected to be laparoscopic/robotic or open?