Hello everyone I'm a new starter.

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Thankyou to src60 and marmitefan59 for guidinging me here.

I was diagnosed with endometrial cancer stage one end of 2023 and had total hysterectomy and removal of ovaries just before Christmas. It was more complicated than thought originally and it took over 6 hours!

Then my staging when to stage 2 as they found a lesion on my cervix.

I have had since then had internal radiation therapy which finished 6 weeks ago, still living with the side effects.

I managed emotionally through this and tried to stay strong for family  but now feel physically and mentally overwhelmed.

I reached out and now I've been guided here.

  • Hello Bess64

    Welcome to the Womb group.

    I am sorry to hear of your journey so far with endometrial cancer and that it has been more complicated than was originally thought. 

    I hope that you have recovered from the surgery. The radiotherapy can sometimes take a while to get over and at 6 weeks, it is still early days. It is worth contacting your CNS or the radiotherapists if you are worried about any side effects or if they are not improving. For me things did take a while to settle. I know when I was going through chemo and then radiotherapy- the effects at time could be both physically and mentally overwhelming and it can get you down. Even though your treatment has finished, do not be afraid to contact them for support. Often just being given some reassurance helps and there is also medication if needed. With radiotherapy it can often be the tummy and bladder effects that can linger and these can have a big impact on how you feel and how you can get out and about. I also found for me fatigue could be a factor.

    I think it is a normal experience to feel like you have coped well through the surgery and follow up treatment and then to feel overwhelmed when it is done. I know myself I did feel quite flat for a while. I expected to bounce back but it did take time and everyone is different. I think that during the diagnosis and treatment you can get so caught up in the day to day appointments and there is little time to think. Once it is done, then the processing of everything can start.

    You have been through something massive and it is no wonder that afterwards you are feeling overwhelmed. Would it help to talk things through? I can recommend the Support Line. The details are below. They may also be able to find out if there is any support in your local area. Sometimes sharing with others who have had similar experiences can help. Some people find counselling does help and this can also be arranged through Macmillan and Bupa. 

    Hope this helps a bit but if there is anything that you need or want to ask, then please do so.

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi and welcome. I too felt I had to be strong throughout my diagnosis and treatment protecting everyone else who cares for me. This absolutely takes its toll. I had to become tougher with myself and consider my own needs above what I perceived theirs were.  always gives good advice and great links to services available to us. Some hospitals offer a life after cancer course, also information on support groups in your area it might be worth investigating. You will get great support on here always, I hope we can be of some help. 

  • Thankyou both,

    Jane you touched on every concern I have, I have a wonderful family who are there for me but I don't always want to worry them especially my daughter.

    I will follow up on the counceling and the support group  at least now I know i won't be pestering.

    Bess64.