Following the results of my hystoscopy last week it was confirmed that I have womb cancer- I’m terrified of what’s to come regarding if it’s spread etc. hysterectomy isn’t my concern it’s if it’s spread and this is my first rodeo with cancer. Any tips on sleeping, I wake up in the night worrying. Thank you
Hi Julia, glad your appointment has come through so quickly. How are you feeling about the MRI? Mine was with contrast which meant having a cannula but it was okay.
Hi I’m frightened because I worry that it’s spread so it’s the not knowing and waiting. I am having the cannula also.
Hi Julia, the waiting is the worst part - I’m pretty sure every single one of us here finds all the waiting and wondering extremely difficult. Hopefully your MRI results will be back quickly - I got mine 3 days later as they came back in time for the weekly MDT meeting that same week.
Hi Julia50, just popped in and saw your post. I was diagnosed in January with endometrial cancer and like everyone here I know what you’re going through and feel for you because it is terrifying. But everyone on here is so supportive and there’s always someone who can offer advice. I’m having my hysterectomy in 21st February and can’t come soon enough to be honest. As for sleeping I know exactly where you’re coming from and I wish I could give you an answer but I’m still looking. What I do find helpful is coming on here and I know I’m not alone even though I’ve got a wonderfully supportive family and friends. Do you have a contact number for the team you’re going to be under? Some of us get a list of contacts from the gynae/oncology team that can be called and I find them helpful, I often call them when I start to overthink and they are always helpful and reassuring and listen. Might be worth asking?
I hope everything goes well for you and take care of yourself
Hi Julia
I was diagnosed last May with endometrial cancer and I was absolutely terrified just like yourself - It's only natural to think the worst case scenario and unfortunately until you start getting test results in there is nothing to do but wait and worry.
Hopefully once you've had your MRI /CT scan results it will give an indication what you're dealing with, but usually you wont get a final staging until a few weeks after your surgery. My MRI initially staged me as a 1b but final staging was a 1a which threw me a little as I was expecting the same or worse and not a lesser stage.
I can only suggest that you try to keep yourself occupied to try and keep your mind off it - I know it's not easy and I went from feeling really strong one minute to complete despair the next and it is really horrible not knowing the full story.
This group is really supportive and I don't know how I would have managed without them.
Take care and keep us posted on how you're getting on.
Hi Julia, I too have had a recent diagnosis, so I know what you are feeling. However, my philosophy is to worry about the things you do know and not what you don't.
An MRI will help with diagnosis, but you are now working within the system and to their time line, not as we would hope to be.
My case is complex, due to the other problems I have, so we, (the cancer team and myself) are up and down when it comes to how to proceed and the delays are terribly frustrating, but for my own sanity I have become pragmatic and as far as I am concerned I have cancer in the womb, the rest will have to wait until I have passed that hurdle first.
Much healing love and hugs...
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