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Hi Rosewood and welcome to the group. There’s some lovely ladies on here all with a story to tell and we will be happy to support you. This time last year I’d had my cancer diagnosis from the hysteroscopy, had my planning MRI (some hospitals do CTs and others do MRIs, some do both!), and results, and was waiting for my op date. The waiting is by far the worst part and I feel for you. When did you have your CT and do you know what day your MDT meet? The day of the week when you got your cancer diagnosis may give you an indication as they often tell you the same day they meet. Have you been given the contact details for your CNS team, for questions and support?

If you want to read about my story, you can click on my name. Many of us who post here have written a profile (you can too!)

Hi I am 9 years post menopause had some spotting. Went to GP's had fast track referral. Hospital appointment 4 days later, had a vaginal scan, my endometrial wall is 8 thick so they went onto to do a biopsy. Went home very worried, waiting is awful. Got results 2 weeks later Atypical hyperplasia.  Had Mri with contrast a week later, then saw Consultant a week later. Which was last week.  He has advised a hysterectomy with everything removed, mri report states tenative grade 1a, if at all cancer. Hopefully not.  I am booked in 5th January, had pre-op, so more waiting.  As you can imagine very nervous can't really think of anything else, trying to keep off Google but it's not easy.  Any words of wisdom welcome. Thank you for reading. 

Hi I hope you don't have to wait too long. I'm down for hysterectomy 5th January. The waiting is horrible, I agree. Good luck and keep us posted xx

Hi Deb, welcome to the group and to the emotional roller coaster ride that’s all too familiar to all of us here. I’d say the waiting is the worst part - the daily, sometimes hourly, trying to get on with life with the overload of information, wonderings and anxieties. Plus the worrying about how family and friends may react or are reacting, feeling responsible for their distress, and the just trying desperately to let it all settle in our own minds and get some semblance of order and control, at least of our own thoughts if nothing else. We’ve had ladies on here who’ve had apparent atypical hyperplasia where it’s turned out to be just that, and others where it’s been cancer - and unfortunately there’s nothing that can be done except to have the op and wait for the post op histology results. Definitely sack Dr Google - he really should struck up. Stick to solid sources like Macmillan and Cancer Research UK. I had my hysterectomy on 22nd Jan this year and did a diary thread - I’ll post this post then come back and edit the link into here. There’s also a good thread on what to pack in your overnight bag - I found that a good thing to distract me this time last year. Have you been given the contact details for your CNS?

Hysterectomy diary thread: community.macmillan.org.uk/.../hysterectomy-day-and-after---diary

What to pack thread: community.macmillan.org.uk/.../1745300

Hi Marmite Fan

i had my CT on Sunday. My local MDT meeting is on a Wednesday but my results also get discussed at Brighton MDT as it’s the specialist cancer centre. I don’t think I’ll hear anything till next Wednesday. I am petrified they will find it’s spread although I went to my GP the first day I had the bleed and was referred straight away. It’s all beginning to effect my sleep as I lay awake worrying . Having the polyp found to be cancerous and also womb terrifies me

Hi Rosewood, I’m the next county along from you (Hampshire) and had my appointments, op and treatment at Southampton. It’s understandable to feel overwhelmed and it’s also okay to feel anxious. I’m sorry that the worry is disturbing your sleep. Both the waiting and the feeling of not having any control over the situation is extremely difficult. I just want to say to you that you’re doing okay. You can get through this without any pressure to feel “positive”, you’re already doing well to have been to your doctor, to have had the scans and to be willing to go forward. That’s being pragmatic - doing what needs to be done. The waiting is a big part of the stress - I’d say it’s massive. Our minds fight to try and take it all the info, and to let things settle, but then the bits we don’t know/can’t control make our minds spin. Whatever is found (IF anything else is, which it may not be) they will be able to do something to help you. Have you been given the contact details for your CNS team?

Thank you for these, I actually read them last night, I'm a bit of a sponge at moment for experiences and information. I appreciate we are all different and we deal with things differently but we have all faced the unknown. I have not been given contact details, just a number for the Pre-op nurse, who said to call if I needed to speak to anyone, maybe that was CNS?  My family are all a bit, well have hysterectomy and get on with it, so it's a bit tough as don't want them to know how worried I actually am.  Thank you for reply and accepting me as friend.  I have been reading posts but not sure if was going to post myself, as don't really know what I'm doing, but it worked.   

Hi Deb, I’d suggest phoning the pre op nurse today and seeing if she’s CNS or can give you contact details for them. Your CNS are there to support you and are typically available office hours Monday to Friday. I phoned mine a lot between diagnosis and hysterectomy, and then between histology and treatment. They knew my voice before I said my name lol. They had access to all my notes, and also my results and not only offered support when I needed it but also chased results and appointments for me, which was very helpful. I feel for you as it’s tough when we’re carrying the weight of our own worry plus feeling responsible for our family’s feelings about it too. I personally found it easier to lean on my CNS rather than my family. 

Thank you, I will give her a call and see what I am told.