New here awaiting urgent biopsy results

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Hi all,

New here. 

After nearly 6 months wait finally got to see a gynaecologist. Been having continuous bleeding, clotting, unbearable abdo pain. Dr thought I was premenopausal but consultant point blank ruled it out based on my age. He told me to wait for an urgent biopsy appt which took another month to come through & only happened due to a cancellation. 

Just had an endometrial biopsy this Saturday gone. 

Been told I have thick lining measuring 11.4mm (enlarged). Diffuse Adenomyosis in myometrium. Of course google this and it turns out it's a precursor to endometrial cancer. Also found a small fibroid 12mm. 

Well post biopsy I have not been able to move at all. Stomach is so sore. I'm bloated. No energy & abdo pain.

Results will be in approx 2 weeks time so waiting game till then. 

Just watching on news about cancer patient backlog causing death. I'm slightly freaking out 

  • Me too Pray tone4 Last Friday. Sharing positive vibes xx

  • Hi Mazy Wazy 

    unlike u I told my Dr when they just wanted me to take a urine sample in 2 weeks  after the first one came back with no infection just blood but to repeat in 2=weeks time I said that don’t you think a woman of my age 63 post menopausal should have further investigations I was being proactive sent email to surgery  find you get more done as you have a paper trail  within 2 days I was having an internal by the Dr she was amazing said it looked sore she could see discharge and pink discharge she sent for Gynaecologist referral and  within 2 weeks my blood tests had come back as she sent for cancer markers and they were raised had the ultrasound ring me for transvaginal scan which happened in the week after I’d been to Drs  they said my womb was thicker than they would like she said they would  give me biopsy when I went for my gynaecologist referral which was very painful took about 5 said my womb was 22-4 mm and should be 4mm told me there and then it was cancer could feel growths and was really bad so shocked and on my own as u weren’t allowed any one I due to covid she wanted me to have another bioosy because if she  got all she wanted it would of bled so that was organised if you go on my profile you will see my story up to date from October last year. I’d ring your cancer nurse specialist get her email that’s what I was doing should be able to find her on the hospital site under Gynaecology I rang her first as my results weren’t 2 weeks coming back and she will know no managed to squeeze me into a clinic just after they came back as they an MDT meeting every Monday I haven’t heard about a death because of back log but do feel u have to be proactive find out consultants secretary I email her too she was most helpful chased up my chemo referral I find you have to be a bit proactive or you get left for longer I know you shouldn’t have to but with the covid you have to if you can’t find the emails or phone numbers yr hospital or CNS will know hope this helps sorry your in so much pain you should be having better pain relief I was told heated pads would help I had microwave ones but invested in a electrical heated one goes off automatically after 90 mins off amazon and stronger painkillers off dr emailed their general enquiries and prescriptions  sometimes have an appt over the phone or they do it from the email or you have to fill i an econsult form I did this and they told me to ring the surgery so that was what I’d started to do so had to ring them again and explain, you may not get yr CNS until u have had yr biopsy results but you can still ring secretary my CNS hadn’t even heard of me until I informed her and when I went for appt she told me that but when the gynaecologist said it was cancer  I think they should of got her then and took me to one side after as it’s hard to take it all in and they can explain everything better I thought that was it for me but she said oh no we can treat you but they only have one CNS for gynaecologist and she’s in clinics everyday and on her bleep number so I can  reach her through that or leave message or alwayscsomeone wupithbsimilsrvsturybring they are trying for another but it hasn’t happened yet so I understand how things are there, let me know how you get on there are so many amazing ladies on here who will get in touch when  they see  yr story hope you are sorted soon take care hope the pain eases.

    hugs to you 

    mo k xxx

  • Thanks TJH. Sending positive vibes back x

  • Gosh Mo K that sounds like so much work ok your part. I will have a read of your story. Thankyou for sharing your experience with me. Wishing you all the best in your journey xxx

  • I think for me the diagnosis of adenomyosis makes so much sense with the heavy periods and pain etc. I got confused as he said he doesn't think it's cancer but then sent of an urgent biopsy. So I feel like I'm in the middle till results come through. At least I have a diagnosis that explains some of it now. Have had many internal scan past 5 years not one consultant picked it up.

  • Hi  and a warm welcome to our little corner of the Online Community. Here you'll find a lovely group of supportive ladies who have all been exactly where you are now. Any possibility of cancer diagnosis brings all sorts of stress and fears and if anyone can hold your hand and reassure you we will as you’re not alone in this. We're all at the start, in the middle or the end of what can only be described as a roller-coaster ride. The ride no-one wants to get on.

    We all agree the time waiting for test results is the pits, we've all been there climbing the walls,

    It’s always helpful to others if you write a little something (or a lot) about yourself and how you came to find yourself here. You can enter it into your profile (click on your username and select “Profile”) It’s helpful to other members with a similar diagnosis who can then hopefully answer your questions. It also means that you don't have to keep repeating yourself. You can amend or update it at any time. If you’re not sure what to write, just click on my username.

    If you want to ask any of us any questions please come back and do so. There's always someone around and we can offer a shoulder to cry on, a hand to hold or listen to a rant, we’re here for you.

    It might also be a good idea to download this booklet Understanding Womb (Endometrial) Cancer. I found it invaluable on my journey. 

    Click on the link I’ve created to find out more information covering diagnosis and treatments for Womb cancer.

    You might also find this link to what to take in my overnight bag useful for when you have surgery.

    It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear. It's free to call on 0808 808 00 00  8am to 8pm, 7 days a week. Have a look to see what is available by Clicking here .

    There is also an Ask an Expert section, but you should allow two working days for replies from our expert team.

    Sending you welcoming hugs, Barb  xx 

     


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  • Thankyou so much MrsBJH. I'm not getting much sleep so it will be a good to have a read up. 

    It's silly really I've seen my mum through stage 2 endometrial cancer so I should be more at ease with it :( 

    I feel like I'm being daft especially with not even having a diagnosis yet but for some reason I feel very uneasy about it all. 

  • Do you jump every time the postman comes? I do! See no evil Until we are told otherwise, we are fine Cherry blossom Tania