Just diagnosed with endometrial cancer 2 days ago

Hello Morar and I am so glad you have found this group and really hope you can find some peace with advice from others who have been on this journey. 

If you tap on my name it will give you insight of my journey so far.

It is a shock to learn you have cancer but once the shock is over you will learn ou are not alone and almost certainly there is another lady with the same as you on this chat group willing to share their experiences,there are many types of womb cancer, some just need a hysterectomy  to cure.  There are also stages and grades  of every  cancer, this is very important:

Stage of cancer means how far it has spread

Grade of cancer is how aggressive it is. Here is link:

www.macmillan.org.uk/.../staging-and-grading-of-womb-cancer

You will find other chats that explain this.

It is important that you feel supported on your journey and you can be sure you will get this on here. Please ask away as many times as you want you will get some different answers from.ladies with their own unique experiences. 

Have you been told what stage or grade or type of cancer you have?

Hi Morarand a warm welcome to our spot in the Online Community. It takes a huge leap of faith to join forums such as this but you'll be glad you did.  Here you'll find a lovely group of supportive ladies who have all been exactly where you are now. Any possibility of cancer diagnosis brings all sorts of stress and fears and if anyone can hold your hand and reassure you we will as you’re not alone in this. We're all at the start, in the middle or the end of what can only be described as a roller-coaster ride. The ride no-one wants to get on.

It’s always helpful to others if you write a little something (or a lot) about yourself and how you came to find yourself here. You can enter it into your profile (click on your username and select “Profile”) It’s helpful to other members with a similar diagnosis who can then hopefully answer your questions. It also means that you don't have to keep repeating yourself. You can amend or update it at any time. If you’re not sure what to write, just click on my username.

If you want to ask any of us any questions please come back and do so. There's always someone around and we can offer a shoulder to cry on, a hand to hold or listen to a rant, we’re here for you.

It might also be a good idea to download this booklet Understanding Womb (Endometrial) Cancer. I found it invaluable on my journey. 

Click on the link I’ve created to find out more information covering diagnosis and treatments for Womb cancer.

You might also find this link to what to take in my overnight bag useful for when you have surgery.

It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear. It's free to call on 0808 808 00 00  8am to 8pm, 7 days a week. Have a look to see what is available by Clicking here .

There is also an Ask an Expert section, but you should allow two working days for replies from our expert team.

Sending you welcoming hugs, Barb xx 

Hi Madesp, thank you so much for replying and giving me some links to look up more information. I haven’t been told Grade or stage, the consultant didn’t tell me. It was an appointment for the biopsy results and I was told I need a hysterectomy within weeks. CT on Thursday. I’m so glad I’ve joined this group and thank you for your support. I hope you are recovering well after your hysterectomy. 

Hello MrsBJH

Thank you so much for your message, I’m also very glad to have joined this forum, I actually feel a bit calmer reading how supportive and open people are. I will write a profile soon , early days and still processing all the information but again, thank you . 

M x

Bless you Morar. I had a hysteroscopy and biopsy in November, and my results showed cancer. I then had an MRI and that indicated probable grade 1 and stage 1a. I had my pre assessment for my hysterectomy two weeks after the MRI, saw my consultant end December as he was taking over my care, and he gave me my op date of 22nd Jan. I’m recovering well from my op and had my post op results last Friday. Disappointingly, though the grade remained at a 1 which is good, the stage went up from 1a to 2, as a few cancerous cells were found on top of the cervix, which was separate from where the original cancer was. This means I am being offered adjuvant radiotherapy to reduce the risk of recurrence. But what they also found were “stics” in my Fallopian tubes which are precancerous and indicate a possibility of a rare genetic mutation. So after my external radiotherapy and internal brachytherapy, I will be having genetic counselling and testing. I don’t know if your consultant could know yours is definitely genetic without specific testing being done. Have you been given the contact details for your CNS team (specialist cancer nurses who are there to support you and answer your questions)? Mine have been a great help.

HI Morar  I too am so pleased I joined the online community lovely helpful ladies a,ways find someone with similar stories mine is on new to site I only found out October I had any signs and now just had my second chemo today that’s why I’m still awake with all the medicines they give you I have had a kit of booklets from the Macmillan centre the lady who works there brought them to me when I was having chemo assessment which I have yet to read we are all hear for you I always find it’s best to keep talking all the best to you keep us informed

love and hugs Mo xx

Hello Mad

Thank you for your lovely reply. I have had a few problems signing in but I’ve been successful today! Since my last post I’ve had my hysterectomy with ovaries, tubes and cervix removed too. That was 3 weeks ago now and I’ve still not got definite word about my treatment plan. My consultant said my biopsies missed the cut off point for the MDT. I do know I have LSVI but I’m too scared to look it up. I hope you are doing okay . 

Morar x

Hello Marmitefan59 

sorry I’ve taken a bit to reply. I’ve had my hysterectomy and waiting to hear about treatment. I hope you are doing okay x

Hi Morar, it’s good to see you again and well done for getting through the op and out the other side. How are you doing with your physical recovery? I’m just over 7 weeks post op now and pleased with how I’ve done. I can now do a big shop and lift bags in and out of the car without feeling like it’s too much. Have also had several big hot deep baths which I adore. I’ve had my oncologist appointments and my planning CT, and will be due to start my radiotherapy on 11/4. I had a BRCA genetic blood test last week but the lab messed up so I’m having it done again tomorrow. I’m told that some of what was removed during my op is also going to be tested for Lynch syndrome. Hope you get your results appointment soon. 

So glad to hear you are recovering well from your op and it’s really encouraging to hear you’re managing to do a big shop! That’s great progress. I’m so looking forward to having a bath too! I follow your radiotherapy experience with interest, you contribute so much and having read some of your posts, I find your and everyone else’s experiences so reassuring. I am expecting a call trow so will update on my treatment. I’m recovering pretty well (I think). Feeling I’m moving better everyday and had a walk to the park today for 20 minutes which was great. Still bleeding at times and bowel issues ( urgency and loose) probably normal at this stage though. 

I have been told I have LSVI but still Grade 1 , and genetics have been in touch and should also get a pathology report soon after being tested for Lynch Syndrome too. 

Take care and I’ll let you know how I go .