Concerns after treatment

I hope your mum is coping ok, has she been on the therapy for long? Is she having to deal with any of  side effects?

My oncologist is recommending me for Dostarlimab. Its for 2 years, like your mum.

Just waiting to hear when we start.

Will send an update.

Thank you for the contact Lucki2021. How are you coping through all this?

Tell your mum to keep going and all the best from me. 

Big hugs xx

Hello Shellie

im very sorry for not responding sooner.  I didn’t receive the notification..

how are you?  Have you started treatment?  Mums been on immunotherapy since Aug and seems to be doing well 

yes - slight side effects.  Achy wrists and hands but mum says it’s a small price to pay if the immunotherapy works! 

look forward to hearing from you xxxx lots of love xx

Hello Chui

very sorry for not responding sooner.   I didn’t get a notification about your message!

mum was orginally stage 2.  Received external radiotherapy and we thought it was dealt with.  She had the usual appointments but no scans.  Just a face to face and an examination…

we don’t think any lymph node samples weee taken during the original operation 

Have you considered paying for a private scan? 

lots of love and good wishes xxxxxx

Thank you for your reply Lucki2021! 

Glad to know that your mum is responding well to immunotherapy. 

I have started the external radiotherapy. I had the 10th session today. 10 more to go and then 3 internal radiotherapy sessions. I saw the radioncologist today. She only chatted with me to ask me how I felt in general. She said there would be no scans in the follow-up meetings once the radiotherapy is completed. This really worries me. 

I do want to go for a scan or any other surveillance regimes in private hospitals. I will try to contact the one in London which seems to offer personalised post-treatment services to see what they can offer in my case. 

Best wishes to you and your mum!

Chui

Hi Lucki2021

So glad to hear your mum is coping well. That must be such a relief.

I am due to start treatment on Friday. I am nervous about it...

I also have to have a procedure done for my kidneys, as they are not draining properly. Stents, I believe!

I have also been told results today that I have Lynch syndrome, which I suspected...

Will see how things go on friday..watch this space

Take care, best wishes to your mum xx

Hi Shellie69,

• Read your reply to Lucki2021. Just want to wish you well and good luck in the coming days. 

Best regards, 

Chui

Thank you Chui.

 Chui, I do hope you are able to get what you need.

This journey is a constant worry for us all isn't it?

I really hope everything works out for you.

Just keep us all posted.

Shellie x