I have womb cancer...... not like my womb has been much use for the past 49 years. I have had 11 miscarriages. No live births. Its bled for 38 years. Take the bugger out. Get rid of it. Who needs it anyway?
ME! APPARENTLY!
Why do I, at the age of 49, suddenly decide i want this buggering thing? Haha
I have PCOS, Ovarian Cysts the size of Melons, which I have been having regular Prostap injections for for 6-7 years..... I have been on HRT etc. etc.. for a long time.... All of which has helped cause this Endometrioid Adenocarcinoma and suddenly.... before I even know how bad this thing is (I only had my MRI yesterday, after receiving my diagnoses a week ago today) my head is screaming how unfair life is, because I am going to lose my womb and my ovaries, and how less of a woman I am going to be!
So the consultant gynae, who was treating me says I have a triad of reasons for why i have this big C 1) HRT 2) Overweight 3) no babies 4) Diabetes (I am sure thats 4 but i didnt want to correct her.
Now the reason that they found the cancer in the first place was because they forgot to put me in for a scan for my 6 monthly check up on my cysts. And the registrar who saw me asked me how my 3 monthly prostap injections where doing. (as i used to get monthly). I told her that I was spotting and that was new to me. I asked her what we had new to talk about as i hadnt had a scan this time and i always had a scan so they could check the size of my cysts and the cysts had increased in size last time.
So she looked at my scan from six months ago and noted that the lining of my womb has increased and it shouldnt have done unless 1) I had cancer or 2)was pre-menopsausal - which i wasnt because the pro-stap puts you into chemical meno-pause...... so could she do a biopsy??? So there and then, I had a biopsy...... she told me it would only take a couple of days for the results. So i said that it was fine..... 10 days later, still not results, so I started harassing the consultant for them.
She phoned me back last Monday to tell me the results. Which where vague. But that i had it and that my biopsy had been sent to Newcastle for further details. Now my MRI had been booked for yesterday and an MDT for Wednesday coming and the C train had left the station, with me on Board.
I have contact with the C team in James Cook though I dont live there, just my Gynae team at in the main hospital. They are fab! I am lucky. I am staying there. I dont mind the trip.
I went yesterday, they struggled to put in canula (which I didnt know I needed to have an injection) I suddently started shaking like an old second hand fridge as it took them putting one in my arm and failing and then them going to my hand, which bloody hurt like hell!! And it continued to hurt right through the MRI.
I looked at my husband, I was suddenly terrified and realised that this was only the start.......I have a mental health condition too. (The old BPD) Emotionally Unstable Personality Disorder. That I have to wade through, just to get me out of the house. Before I even have to face this big C. Then I have to face PEOPLE!
Thank god so far. They have been nice.
So far i know its
Grade 2
Endometrioid Adenecarcinoma
Lets call her Eada and shes my new best friend. But as I have EUPD and I dont do long relationships. I am going to reject her shortly. Get ready to hear the story of how I broke up with her soon.
Hi Bumbliana well you certainly made me smile! Not ever having had children I wasn't emotionally attached to my womb. I just recall suffering years of horrendously painful periods so when I sailed through the menopause with nothing sinister other than hot flushes I thought I was free and clear.
I was also told by my gynae consultant that I was a prime candidate for this cancer as I hadn't had children, was off the pill for years, slightly overweight and basically my body was an oestrogen factory for the cancer to feed on. I was years post menopause when had a couple of days pink mucous like spotting, was going to ignore it but my bestie nagged me. With no-one in my biological family ever having cancer it was a massive shock when I was told about my unwanted guest. I was also Endometrial Adenocarcinoma stage 1B/ grade 3.
I think the canula they put in was to provide the contrast for the scan. When I look back now it was all so surreal, like I was looking in at someone else going through all the procedures. The waiting for results is soul destroying but it's do-able!
It's not the most pleasant journey I've ever made but thanks to the support of the ladies here it was easier than expected with a few laughs along the way.
Big hugs, Barb x
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