Post Hysterectomy Results

Hello

I can understand that it is concerning when they are taking time to check your results, but it is really important that they are done thoroughly so they can ensure any follow up treatment they suggest is right for you. 

I see you had the same provisional diagnosis as me- carcinoma sarcoma. When was your surgery?

For me the post op results took around 3 1/2 weeks but it would likely have been a couple more weeks longer if I had not kept chasing them up. I can remember waiting for mine and they had not got to the MDT in time and that can sometimes delay things. 

Just remember the length of time it takes does not reflect the results. Sometimes there can be a big variation between hospitals. 

Were you given a provisional stage/grading? 

With carcinoma sarcoma they normally offer some follow up treatment but it can vary according to the post op results. 

One thing you could ask is that they give you a call when the results are in so you are aware and then when you have your appointment you can go through things in more detail. My surgeon phoned me with mine but it took a couple of weeks before I had a face to face appointment. 

Jane

Hiya Jane thanks for the reply I rang up yesterday and they said they cant give me results over the phone appointment is tomorrow  (hopefully not cancelled)had letter about appointment and It said it'll be the consultant in the room and 4 other people could be student doctors who knows. Had operation on 13th May had to go back in for another op 10 days later said week later it was a haematoma and a infection. They said before the op it was stage 1b and after the op they sent a letter saying when the consultant took it all out it look like it hasn't spread. On phone they said the cancer was about 50% in the lining or something or other 

I had several people in the room on some of my appointments. Normally a nurse with me, a nurse/doctor typing up what was said on my notes, the main doctor and then sometimes a student. 

I was a stage 1b after the op- it means the cancer has grown more than 50% into the muscle. (!a is less than 50% into the muscle) 

To me it sounds like they will be checking how you are after the op, confirming the final stage and grade and talking you through any possible further treatment. 

I hope it goes ok tomorrow. 

Jane

Hi Jane had the appointment got to have radiotherapy and maybe chemo getting a phone call either friday or monday to find out when it's starting and the treatment. Said it hasn't spread at all and the radiotherapy is to make sure it doesn't come back

It is positive that it has been contained in the womb. 

I would advise anyone who has a grade 3- particularly carcinoma sarcoma to go for whatever follow up is offered. I had chemo and radiotherapy- took around 6 months extra treatment but was worth it. 

External radiotherapy will target any tiny cancer cells that may remain in the pelvic area. Chemo will target any that are whole body wise. 

Its called adjuvant treatment and as you say it is to do everything possible to reduce the risk of recurrence. 

My results post hysterectomy took about 7 weeks, though I'm a very rare case with both womb (Serous Grade 4b and totally unconnected ovarian cancer(3 types!) which probably made it more complicated.