Atypical Endometrial hyperplasia

Hi,

I have just accepted your friend request. I am in a similar position to you having gone through 2 biopsies I am diagnosed with severe complex pre cancer (complex aytypical hyperplasia) I am in my early 30’s and like you had heavy bleeding for most of my life since the age of around 14.

Im sorry to hear you are also going through this. There’s no words for how this makes us feel is there. I’m so sorry to also hear that the coil hasn’t made improvements.

I have recently had 2 coils fitted, it didn’t work for me and they self expelled in under 2 weeks. It was heartbreaking as like you my husband and I also want to start a family.

I have been currently recommended oral Megace treatment by my oncologist so am currently exploring this. 

Please feel free to private message me, I have been wanting to connect with others too in a similar position. It’s tough but having someone to relate to, maybe we can support each other..

Take care,

Frankie x 

Hi, I am a lot older than you but I have been given the all-clear from grade 1 stage 1 EC after having the coil for a year. It can be done! I replied earlier to ask whether you might just have one coil in, which would be less likely to be expelled - and the Megace perhaps? Other women have had success with hormone treatment and I've never heard of anyone having 2 coils, which sounds difficult to cope with.

It took me just over a year to get the all-clear result and I hope in your case that you find success to try for a baby. Liaise with your team to find what works for you. Sometimes it can take time. Good wishes.

Hi, as posted to another lady, I am a lot older than both of you and post-menopausal but have had success in clearing early stage endometrial cancer with the coil. It took just over a year - but recently I was informed that there is now no sign of disease so it can be done. It was on my second biopsy after having the coil fitted.  Some women take a while for it to work and apparently, losing weight can help too, because it reduces excess oestrogen. I hope you find success.

Thank you for accepting my request, its a stressful experience but im greatful to find someone else currently going through it as well for support and understanding.

Im sorry your having issues too the coils are just not ideal or good experience but hopefully all of this is worth it soon!

Feel free equally to reach out if you ever need to just message

T️ake care,

Helen xx

Thats great news, im very happy it worked for you and thank you for sharing, i really needed to hear a positive experience!!  

Im currently starting a weightloss treatment today to hopefully support to get it to reverse. My next biopsy is July so im really trying to hopefully get some weight off by then! 

Thank you so much for your reply!