Chemo side effects - how are you managing

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I've had 2 rounds of chemo for womb cancer and so far the only side effects are hair loss and some diarrhoea.  

What side effects are you experiencing and how are you dealing with them?

  • Is this the carboplatin and paclitaxel?  

    I’m doing round 2 of cisplatin tomorrow, and haven’t done too badly, little nausea. Think other side effects are due to the radio.  Next after this is the carboplatin and paclitaxel. Oncologist said to me today that carboplatin and cisplatin are similar, but some have more reaction to the cisplatin. So to hear you’re doing well is encouraging, although appreciate that everyone is different.

  • I’ve had a bunch of side effects although not much nausea.  I had painful joints after chemo for a few days, mostly in my knees. Tylenol helps with that.  I had ringing in my ears when things are quiet.  It slowed down after my oncologist cut back on the amount of Carboplatin for cycle5 but it is still noticeable.  The tingling in my hands is much better after Paclitaxel was cut back 20% for cycle 4.  I have one more cycle of chemo next at the end of this month and I will be finished with my 6 cycles of chemo.  Each cycle takes 3 weeks with one day of chemo and 20 days of recovery.  I am starting radiation in April. 

  • Hi Waidh

    Yes, I'm having carboplatin and paclitaxel and so far so good.  I had terrible diarrhoea while having radiotherapy but it's not as bad with the chemo.

    Good luck with your ongoing treatment.

  • Hi DidiOntario

    I had some knee/leg pain during the night 3 days after my first chemo but it settled after walking about.  I am on a 3 week cycle too.

    Your treatment is the other way round to mine as I had radiotherapy first. My skin burnt towards the end of my 25 treatments but I used plenty of moisturiser (MooGoo) which helped. I also had 2 brachytherapy. 

    Good luck with your further treatment.

  • Hi Sbird

    It can depend on chemo regime and doses. Everyone is also different on how the chemo affects them. 

    Mine was paclitaxel and carboplatin.

    I also had some pain- hips, back and joints. Also sore eyes and mouth. Lots of fatigue. I found the side effects I had on the first cycle ,repeated on the following ones and built up with each cycle. When I did have side effects I found that most were managed with medication.

    I wish you well for your next chemo.

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • I was hoping to not do radiation.  My oncologist was hoping to get me on a trial of Niraparib but that has not happened.  I have P53 Abnormal Serous Uterine Cancer which can spread.  That’s why I decided to do radiation.  Some of the studies I saw suggested that Chemo first might stop the tiny cancer cells from spreading quickly after surgery.  Other studies suggested radiation first.  I don’t think the science is all that clear cut yet.

  • I saw that probiotics with a number of different strains helped with the diarrhea from pelvic radiation.  I started taking probiotics recently so I am used to them before I start radiation.  I am going to be treated at a hospital 20 minutes away from home.