Womb cancer

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Hi I was diagnosed with womb cancer in July 2024. Like all of us it was a massive shock. Diagnosis happened quickly and I’m stage 4. I’m nearing the end of chemotherapy. One more session to go, The tumour hasnt shrunk as yet but on the plus side it hasn’t spread. With the chemotherapy I’ve only had a few bad days each session, however the bad days make me feel useless. The chemo has made me lose my hair which was long however I’ve accepted that. What I can’t accept yet is how my life has turned into one appointment after another. The worst of it all is having to rely  on others so much. I know my family and friends say they don’t mind but I do. I’m the one who is normally there for others. I’m usually a very positive person and I still am probably 95% of the time.                                                       How do you cope. 

  • Hi Womb Warrior, 

    Tell us more about you ?

    That's a lot to cope with in 4 months

    xo

  • Hi Mimizan. 4 months is a relatively short time to digest the diagnosis. This is the first time that I’ve felt I wanted to share my experience so bit by. It I will tell my story and share my thoughts. I started to feel extremely fatigued in May 2024. Thought I was working to hard. Fast forward to mid June had a holiday and no improvement. On returning home I developed pubic pain so off to the doctors I went. Turns out the first issue I had was severe anaemia then an internal exam which the dr said looked suspicious. I realised then it was serious. I needed a hospital stay for blood and iron infusions and also had more gynaecology examinations and I was diagnosed at stage 4. Chemo started within 7 weeks. I’ve had 5 rounds of chemo with 1 more to go. The cancer hasn’t shrunk but it hasn’t spread so I’m feeling extremely lucky. On my good days I forget I have this diagnosis but then on a bad day reality hits home. I am not looking forward to finishing the chemo as then it’s yet another scan which will determine the next course of treatment. I will know what the treatment will be after Xmas.

  • My goodness,  what a time you have had.

    I can appreciate that you have had no time at all really to process it all.

    But there is the cancer itself and then suddenly becoming a patient and losing autonomy .

    I understand about being taken over by appointments Upside down 

  • I have to admit I am shocked by your story ...Stage 4 out of the blue ...

    I am upset at delayed surgery for Stage 1.

    I feel selfish now.

    I am getting a lot of support from a friend who had a late diagnosis of a different cancer.

    She had chemotherapy first and then surgery and radiotherapy and 5 years later is here and able to help me .

    Enjoy Christmas with your family and friends

    Mimizan xo

  • I do feel lucky though that I’m not in pain. Also that apart from aching for a few days I can do most of what I’d like to. I’m learning to rest when I need to and listening to what my body is telling me. I don’t think of myself as a patient oddly enough. One thing I have learnt is that I have control over some decisions I.e I had a port fitted instead of a picc line as I felt it would suit my lifestyle better. I’ve already had s phone call from a lady I met at Chemo this morning. We just spoke about her day yesterday and how emotional she is feeling. We also laughed about her sleep walking. So life isn’t all negative. However she did tell me no to overdo things. It’s makes for painful hearing .

  • We learn so much from each other Heart️ 

  • Hi Warrior Woman

    Welcome to the Womb group. 

    I am sorry to hear of your diagnosis of womb cancer. 

    Chemo is tough to go through and I think that most people do not completely understand unless they have experienced it. Even when they tell you the effects, I found that it was not until I started to experience them, I could understand. I know some days I felt really unwell. You are not being useless- it is a tough treatment and your body is trying to recover from some really aggressive treatment. 

    I know what you mean about it feeling like one appointment after another. Its like a treadmill that is moving and you can't for a moment slow down or rest as you will fall off. I also identify with not liking to rely on others and normally being the one they turn to. I did find however many people did want to be there and felt useful if they were given something specific to help with. I know from the other perspective it is tough to see someone you care about going through treatment and feel that there is nothing much you can do- so simple things like keeping someone company with a cuppa or popping out to the shops can make a real difference. 

    For what you are going through, being positive 95% of the time is amazing. No one in these circumstances could remain positive all the time. Even the chemo medication and steroids etc can affect your mood. And the constant appointments and travelling to the hospital and back are hard. 

    Going with the flow helped me and accepting that there would be good days and bad days. Sometimes even during the day, I would feel differently. For me for the first few days of each cycle I was pretty much snoozing on and off and not off the sofa much. I found it helpful to get up and dressed each day, even if into fresh lounge wear - if I stayed in my bed and didn't get up, I felt worse. On better days I would wander around my garden or sit outside with a cuppa. Fresh air helped. On good days I would take a short walk or pop out to meet friends. I tended to pace myself to do one thing a day as I found the fatigue built up. 

    One thing that also made me struggle for the last cycle was the change in my bloods and becoming anaemic. Being low in haemoglobin can make you feel really tired. I also had some other blood issues with magnesium and became neutropenic. I found the neutropenia hardest because I tried to avoid seeing people in case I picked up any germs. 

    I found that once I had my diagnosis things happened very quickly and it can feel like the carpet has been pulled from under your feet. It sounds positive that the cancer has remained stable (not grown) during chemo so that means it is responding. A scan at the end of treatment is also routine. Naturally it is an anxious time. 

    After the scan I would expect another appointment with your doctors and then a decision on what to do next. There are other treatment options that may be discussed and I will pop a link. Sometimes it is good to know what may be suggested so you can think about what is right for you and what you want. 

    Stage 4 Womb Cancer | Cancer Research UK

    I hope this helps a little. I hope your last cycle goes to plan and that your scan results are positive. In the meantime if talking things through would help, then I recommend the Support Line. Sometimes it can feel easier to talk to someone removed from the situation. I know myself it was hard to talk honestly with those closest as I did not want to worry or upset them. The support line can also do a quick search to see if there is any support in your local area. A lot of people find Maggie's | Everyone's home of cancer care really helpful.

    And please do continue to post and ask questions on here. We have ladies on here who have had all different stages and grades of cancer on here and they are a lovely friendly bunch. 

    Lastly I will pop a link to the Endometrial cancer booklet- you may well have already seen it but just in case

    Womb cancer booklet | Macmillan Cancer Support

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Mimizan don’t feel selfish. Cancer is cancer and ww all have to navigate our way through yhe diagonosis. I’m so glad to hear that someone is supporting you who has cancrtx as well. Peop ok w do mean we’ll but they can’t understand the rollercoaster of emotions we can go through.  How long have you been waiting for surgery? Are Zmcmillan keeling you and your doctors surgery? I find my doctors surgery very helpful especially when I need blood taking and I’ve forgotten to book it till the last minute. Do you find you can be honest with your family about how your feeling? 

  • My GP surgery has been great although they are always under a lot of pressure themselves and also have to rely on me to update them whilst they wait for information from the hospital.

    They are all experienced GPs who know my family circumstances and that is really helpful.

    I also found out via MacMillan that our local leisure centres have a pre and post operation fitness programme .

    I'm signing up for this now so I have a plan to get moving again after surgery.lhave been doing a lot of walking since diagnosis and I have lost weight which I needed to do It's ironic I now have the "why" I didn't seem to have before.

    Life is full of surprises but also lovely people who want to help Blush 

  • Mimizan I hope that surgery comes along soon for you, it will put your mind at more ease, I love the fact you are walking, fresh l air is good for the soul in my experience. Losing weig hey is a win on its own. Try here are so many lovely people about who genuinely care.look after yourself