Thickened endometrium

Hi Alibongo1402

Welcome to the Online Community.

I am sorry to hear of your diagnosis. It is very normal to feel that you can not focus on much else. Its a scary time and the uncertainty is hard. Once I had all the testing done and a treatment plan, It felt more in control.

The CT is for staging the cancer and seeing exactly where it is. This along with the biopsy results gives a provisional stage and grade of cancer. Although there may be exceptions, most ladies are offered a hysterectomy- even if there is some spread- as long as it is medically safe to do so. Depending on the post op results there does sometimes need to be some follow up treatment- I myself had chemo and radiotherapy. Some ladies just have the surgery. 

I would suggest giving the Support Line a call and talking things through. It is there from 8am-8pm and they are lovely on there. 

I hope your CT goes ok at the weekend, but in the meantime we are here if you need us. if there is anything you want to ask, please do so. if you click on my name my profile will come up and you will get an idea of timings etc. 

This link will give you some information that I found helpful when I had my diagnosis.

Womb cancer booklet | Macmillan Cancer Support

Jane

Just popped on to say thank you - this is really good advice.

This as been going on for 3 months as a mri scan an picked it up when I was going for some other treatment I have been told it grade 3 but not the stage yet did you loose weight with this terrible disease

Hi there,

 I wish I could answer your question. I’m not medically qualified. I know that I was very grateful to have a good line of communication with my female surgeon (yes - I did request this before even the biopsy/hysteroscopy). I also rang the specialist nurses in the GYN team. If you have a really urgent medical question for your medical team, most hospitals use a ‘paging system so that it you ring the hospital switchboard, they do have the capacity to send a pager message to whichever specialist nurse is ‘on call’. The other option is that if you do have an urgent medical question for your surgeon, you can always call their medical secretary. One of my friends who works in a major London hospital helped me with navigating all of this. Do stay in touch x

Grade 3 is the type of cancer, stage is where it actually is. 

I lost weight during treatment due to some side effects. My only real symptom was a bleed. However although bleeding seems to be the main reason people get help, there can be other symptoms. 

The main thing is that it has been found and that they are doing the scans in order to determine the best and most effective treatment. Once they have a provisional stage and grade, I would expect that you would likely be offered a hysterectomy- there can be exceptions but it is the main initial treatment. 

I know how scary it is but once you know exactly where it is and have the plan to deal with it, it will feel more in control.

Hi

I am also in the same situation. Waiting for biopsy appointment. I am very anxious as well. I am the mother of 3 children and worried about this too. My thickening has been noted on 3 previous ultrasounds over the past two years but this last MRI was the first time I was actually referred to a specialist. I have all sorts of horrible scenarios running through my head. Anyhow I just wanted to say "Hi" and let you know that I feel for you and I hope that your results are negative. Take care!

Anna

I know it’s so so scary! It be 2 weeks on Wednesday that I had my Biopsy done its the not knowing that’s really hard I’ve been so anxious and irritable and having all sorts of bad thoughts going through my head! I hope you have a negative result to keep me updated, do you have any symptoms? Xx

• Hi did u get your results?