Hi everybody
I had grade 2 stage 3a endometrial cancer after suffering with adenomyosis for years.
I have had a total hysterectomy, chemo, radiotherapy and a load of commissions from a ureter being nicked during surgery so I still have a stent and nephrostomy tube from my kidney.
Waiting for post treatment blood tests and scans over found myself being quite negative although I remained fairly positive over the last 14 months.
I guess it makes some sense as I'm less action focused and running on adrenaline but I find myself really anxious about things now and convinced the cancer had spread or is going to.
How have others coped after treatment trails off and can anyone?
I'm feeling a bit isolated tbh.
Hello
It sounds like you had a rough time during your surgery and have done well to keep positive over the last year.
It is natural to feel anxious when a post treatment check up happens. It tends to bring things back for a lot of us. I also find that I start noticing my body more and start getting niggles and twinges. I think also you are right, that during treatment you get so focussed on going from appointment to appointment that you almost don't have time to think.
At my hospital they do not do the scans unless something is picked up at the check up appointment but there can be a fair amount of variation with post treatment checks. This is my experience of post treatment checks. I find it helpful in these circumstances to know what is likely to happen. I also look at the list of previous questions and it can ease some of the anxiety as I can go through them one by one and think- well I haven't got that one or that etc.
I would imagine that you will have your scan and blood test and then have an appointment come through around a week later to go through them. My advice would to be to maybe think of a list of anything you want to ask about and take it with you. I also find it helpful to try to think of the anxiety as helpful because it is making you more aware of your body and noticing any changes. And noticing these changes and reporting them is what keeps us safe. If anything is picked up then it is best that it is found sooner.
I hope that you do not have to wait too long for the scan. In the meantime if talking things through would help then please do give the Support Line a call. It is very natural to feel as you do and they will understand.
Jane
