Hi everyone,
I’m really hoping for some advice or shared experiences, as I’m struggling quite a lot right now. I hope you dont mind me sharing this on your feed.
Eight weeks ago, I had a Mirena coil fitted under general anaesthetic, at the same time as a smear test and biopsy. The main reason for all this was that I’ve been suffering from very heavy periods and low iron levels.
Before the procedure, an ultrasound showed my womb lining was 25mm thick. My gynaecologist said the Mirena would help thin the lining, reduce or even stop my periods, and hopefully improve my iron levels and energy.
The first few days after the coil was fitted, I felt fine. But on day 4, I started getting cramps and sharp pains, which lasted about a week. Then I developed severe backache, and the pain just kept getting worse — inflammation, pelvic pain, and constant discomfort.
Every time I called the GP, I was told the pain was likely my uterus adjusting to the coil. I didn’t get an appointment at first. By week 5, I dropped off a urine sample, which showed traces of white cells, protein, and blood. The doctor sent it off for further testing, but within a few days I became extremely unwell — fever, chills, and shaking.
I ended up being taken to hospital (111 called 999 for suspected sepsis). Tests showed I had a kidney infection, and I was put on IV antibiotics for 4 days, then oral antibiotics for another 3. Thankfully, I improved, and my blood and urine tests returned to normal.
However, even now, I’m still experiencing inflammation and pain, especially in the early morning. It starts in my lower right back, then spreads to my right hip, pelvis, and upper leg. It’s affecting my sleep and mental health — I feel constantly exhausted, frustrated, and on edge.
I’ve had another ultrasound 2 weeks ago, which showed the Mirena is in the correct position, and recent urine tests have been normal. I’m still spotting occasionally, and the pain gets worse around my period, though bleeding is lighter.
I’m planning to book a GP appointment tomorrow, but honestly, I’m at breaking point. I regret having the Mirena fitted, even though I understand it was meant to help prevent a thick womb lining and lower my risk of endometrial cancer (I’m 40, so perimenopause was a concern).
My husband’s been really supportive, but even he says maybe I should try to stick it out — though I’ve been in pain for 8 weeks now, and I’m finding it harder each day, especially as I also care for my 8-year-old nonverbal autistic child.
I just want to know — will this pain get better? Has anyone else gone through something similar and come out the other side?
I’m typing this at 3am because I can’t sleep from the pain. I’m currently taking paracetamol, ibuprofen, and naproxen (the GP thought it might be musculoskeletal pain), but it’s not giving much relief.
Any advice or shared experiences would mean so much right now.
Thank you 
Hi Ruky
Welcome to the Womb group.
I am sorry that you have had such a rough time lately and that you have been in pain for 8 weeks now.
it sounds like you have done everything right in seeking help, calling 111 and in getting the ultrasound to check the position of the mirena. Making an appointment with your GP is a good next step. You seem to be getting a lot of pain and I wonder whether it needs investigating further to confirm whether it is connected to the mirena or whether there is a possible other cause.
Although the mirena has worked for many ladies on here, it does not suit everyone.
I had very heavy bleeding in perimenopause and went to my GP who put me on the progesterone only pill and this worked for me. I did feel worse for a couple of months and then it settled down and my periods pretty much stopped.
Talking to your GP seems very sensible and worth asking whether the symptoms are likely to settle, whether there is an alternative that could be tried and also whether there could be another cause, perhaps connected to the coil such as infection. I know that you have said bloods have returned to normal but I just wonder whether a repeat and full test would be in order- perhaps involving hormone levels?
Hopefully you have managed to arrange an appointment with your GP now but in the meantime you could consider giving the Macmillan Support Line a call and speaking to one of the nurses. They are available from 8am-8pm every day.
Jane
