BLEEDING TIREDNESS FATIGUE FINALLY SOMEONE SAYS IT AS IT IS.

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After five months plus of bleeding more heavy than light with massive clots most days although I must admit some days they would be small if I could see through the heavy blood in my pee I was persuaded to contact the cancer hub at the Royal Infirmary Edinburgh my husband new I had contacted the GP surgery through EConsult and was advised that I had a month's worth of Medroxyprogesterone (Provera 30mg a day plus the coil) to stop the bleeding as usual wrong advice she probably didn't read my notes as last time she tried to give me estrogen to stop the bleeding and I had to explain to her why I couldn't take estrogen with Endometrial Cancer anyway I was informed to contact my oncologist, the same usual crappy information as usual from one certain GP (UNBELIEVABLE AS I AM NOT THE ONLY ONE THAT THINKS THAT)

On Thursday 8th February 2024 I decided to contacted the hub to leave a message for that useless CNS who never gets back to me, to be honest not only me but our 24 year old daughter who in 2022 had a massive 15cm abscess attached to her right ovary and tube unfortunately scans had showed dark areas within the abscess, the consultant at the time wanted to prepare our daughter for either outcome if it were to be cancer, after about three weeks waiting for lab results cam back clear thank god it wasn't Cancer unfortunately she lost her ovary and her right tube which will make things harder if she wants children as like myself I gave her Polycystic Ovaries and Endometriosis not forgetting Fibromyalgia. 

Anyway I mentioned it to the operator that Lorraine never seems to get back to me and could she put down in the message to contact me this time !!!! The operator got defensive saying "I don't know about that Lorraine is really good at getting back to her patients" I informed her about the large text I had sent Lorraine regarding Magace and the Palpitations every 15 to 20 minutes also messages to the hub, the operator looked back said the last time I contacted them was September she was wrong as I had contacted the hub in November, December and January then she said " The only number to contact Lorraine is through the hub"  WRONG again Laureen gave me a mobile number at the beginning I asked the operator " do you want the mobile number !!! "              I was getting sick fed up with her attitude and eventually said to her " I AM NOT HERE FOR AN ARGUMENT I NEED TO GET A MESSAGE TO CNS "  her answer was " I know your not here for an argument but Lorraine is on annual leave at present " I asked who can I leave this message with !!! " the hub receptionist,  " I will leave a message for the other CNS who will get in touch about your bleeding within 48hrs " that was Thursday 8th Amanda phoned at 11am Friday 11th February 2024 I explained to her " I was so done with the bleeding that's it's been 5 months plus on and by off I mean a light couple days with smaller clots and when it's on its like mini hemorrhages and large clots, for 3 or 4 days " she agreed that's it's a lot to handle nevermind my cancer plus other medical issues but she doesn't think anything more could be done except increase the Provera " So she going to talk to Doctor May and get back to me on Tuesday 13th ".

Allistair mentioned was looking really pale and tired today ( I do feel crap but didn't want to say anything) Allistair says it's more than likely bleeding all the time and the stress I am under regarding the cancer and trying to lose weight so that I could get operated on, the fatigue and tiredness is something else especially with joint pain and period pain just gets you down, so Tuesday will be interesting.

One more interesting thing that I have been asking for the last 18 months was the bleeding due to the Cancer I never ever got a outright answer untill the CNS nurse said the bleeding is symptoms of Endometrial Cancer, to be honest I knew it was but I just wanted it verified by a professional medical person