Worried and teary

My womb lining was 8mm, I had polyps, one of which had precancerous cells, I went in for a hysterectomy on 18th September, came home the next day, histology was all good, no precancerous cells and no cancer, so not everybody gets bad news x

Stay away from Dr Google, he needs deregistering.

Thanks for your reply. I just feel emotionally drained, this has been going on since October as they went down the urology route first to rule everything out with bladder,kidneys etc. Not even a mention of hysteroscopy/biopsy yet ....don't know how much more I can take....I'm an anxious person at the best of times 

Mine started way back in January and wasn’t resolved until the end of September…I’m also an anxious person and I’ve spent the whole of this year worrying about something I couldn’t do anything about and which turned out to be ok anyway.

Im sure once you are at your appointment next week they will explain how they are going to proceed and it will all progress quite quickly from there.

i went through all this before back in 2019 and all my biopsies then were clear, again it was polyps, none of which showed up (either time) on the ultrasound.

i hope everything goes well at your appointment x

Hello Maz25

Welcome to the Online Community and the Womb group. There are a lot of lovely ladies on here that will understand how you are feeling and will want to offer support. It does not matter that you have not had a diagnosis- some ladies on here do end up being diagnosed with cancer but others go on to have different causes for their symptoms.

You have done the right thing in getting checked out- well done- it must have been hard to have these symptoms and to not know what is causing them. The thickened womb lining (hyperplasia) can have different causes but the urgent referrals are to rule out the most serious causes first. In my hospital everyone who has any potentially serious gynae symptoms is always referred to the gynae oncology unit. - they are best equipped to do the examinations and if necessary the hysteroscopy (looking inside with a tiny camera) and biopsies. I remember feeling quite scared to see the words gynae oncology the very first time, so you are not alone. 

It is no wonder that you are feeling emotional and it is perfectly normal in these circumstances where you are worrying and waiting to find out what is going on. For me the best things to do were to go with the flow and accept that I would feel very up and down and indeed anxious waiting, to talk to people either close to me or on here. I can recommend the Support Line, if you feel like talking things through would help. The number is below. Also try to keep busy when you can, it gives less time to think and stay away from google. At the moment you are being checked out for some symptoms. On Thursday you should have a much better idea of what is going on. Once you know what is going on then you should have a plan and once a plan is in place, things normally feel a bit more under control. 

In the meantime, please do continue to reach out on here as much as helps and if there is anything in particular that would help or that you want to ask, then please do so. 

Jane

Thank you Jane for your kind reply it is much appreciated. I know I am being over the top when I've not even had a diagnosis and as you say they are just symptoms....but they are ALL the symptoms leading towards an inevitable outcome. I am so devastated at the moment....my first grandchild is due soon and I just feel like someone has waited until the happiest time of my life and pulled the rug out from under me...well and truly. I've got an amazing husband and 3 sons and their wives/girlfriends but I can't stop crying every time I see them.  Sorry again as I feel a fraud but don't know where else to turn at this point 

Maz, honestly I had almost everything which could lead to an endometrial cancer diagnosis..

I’m very overweight (BMI 40)

I don’t have any children

I have PCOS

I am T2 diabetic 

I was absolutely convinced I would get bad news, the lovely ladies on here all told me not to worry as everything could turn out just fine…and it did…so please try and put everything to the back of your mind until you’ve at least had your appointment..I know it’s not easy to do but you will make your mental health much worse by constantly overthinking x

I know everything you say is true logically but I just can't cope....it's just the waiting since October. I appreciate everything you say but it's all about the symptoms and they don't look good.  Thank you for the support 

You are not a fraud and I am pleased that you have turned to us. Please continue to do so. I think what you are feeling is very normal and it is natural to feel teary. Crying is not a sign of weakness, it is an expression of how you feel and at the moment with the heightened emotions of the Christmas season and all of this going on I am sure your family understand and just want to be there for you. How wonderful to have your first Grandchild soon and maybe that is something to try and focus on. 

If it is cancer we will be there to support you. If you click on my name my profile will come up and will show my own journey. I remember feeling very much like you do now but I did the treatment and got through it. At the time everything felt very overwhelming, particularly until I knew for sure. Once I had the diagnosis and the treatment plan, I focussed on that. I won't say that it was an easy time but I got through it. 

I will be checking in to here over Christmas and I am sure others will be, so please do reach out if you need us.

Jane

I should have added that I had post menopausal bleeding on both occasions (2019 and 2023).

it’s natural to worry and it’s good to write down your worries too, I always found it helped me when I posted on here.

I wish you well and hope any biopsies come back as normal x

HI Maz25 ,

firstly you have had some wonderful replies and i know when something is wrong and your worried its totally normal to feel teary etc, its our natural response to these emotions that fill our heads. I am so glad your getting checked out and as said previously there is lots of reasons for your symptoms. I am also going back to the  gynaecologist hospital i had my treatment in on Thursday too, as I am having a few little issues that i need a few answers too as i had womb cancer back in 2017 and as a precaution my Gp has sent me back to my oncology team, i had an ultrasound last week which was reassuring for one of the issues and i am just glad to be getting checked out as its so important for any of us, that and i have recurring uti which can complicate things.. Now i understand you feel a fraud because you haven't been diagnosed with anything yet, hummm why feel a fraud you have real concerns and any bleeding like that has to be checked out and you have done absolutely the right thing, sometimes people struggle to go and get checked though all kinds of reasons and i am just glad you were brave enough to go and speak with your doctors. 

Good luck for Thursday i really hope you can get some reassurance and that its nothing to worry about but if it does turn out to be cancer be assured you will have lots of support here. 

Sending gentle bear hugs