Still waiting fir surgery for high grade serous carcinoma. Pain is getting worse and I've now been bleeding for 54 days straight.
I have left messages with my oncologist . She called and said they're waiting for a date for robotic surgery. She had told me they were likely going to do lapraacooic or robotic surgery.
Not sure why this is better, if it means I have to wait longer. Does this mean the cancer was not as bad as they originally thought ?
Hello Nit.Thu57
I am sorry to hear that you are still waiting to hear about when your surgery will be. The waiting is tough and I get that you just want to be given a date and to get it done now. I am sorry that the pain is getting worse and you are still bleeding after 54 days- it must be getting you down now.
I wonder if contacting your GP about the pain and bleeding may help? I wonder if there is something that would help safely control the bleeding until the surgery. I did similar as I had had a diagnosis in March last year and then there were a couple of weeks where I hadn't heard anything, didn't know what was happening and at that stage I didn't even have a consultants name to contact. My GP was able to contact hospital directly and within a couple of hours he had sorted an appointment for the following day (Friday) and I had surgery on the Monday. Your GP may not be able to get the same result but may be able to give you some more info. I also wonder whether you might warrant a blood test to check you are not becoming anaemic from all the bleeding? I was given one just to check levels.
Laparoscopic and robotic surgery is similar and from what my consultant discussed with me , they are both similar and better options than open surgery in terms of recovery. Both types are less invasive (I had 4 tiny cuts in my tummy-about 1cm) and the instruments went through them. The instruments are held by the surgeons hands directly. With the robotic option the surgeon controls the robotic arms rather than the instruments directly. This can mean there is very precise control. Mine was done laparoscopically which was my surgeons preference.
With regards to waiting longer, I don't know if it will mean that for you as all hospitals are different but it is something that you could ask your doctor. From what I understand from my own experience, its all about availability and surgeon preference and patient need and it doesn't seem to be due to a change in the actual cancer. Mine was an aggressive carcinoma sarcoma and would have been the same however I had the hysterectomy.
I hope this helps a bit and I hope that you here about your surgery date very soon.
Jane
