I’m writing this because I feel very let down. In the beginning last October when my cancer was found everybody was there. Dr nurses, nurse specialist and very quickly I was took in operated on, it was all over whelming that part. I’ll be honest I basically got told what was going to happen and I felt like I was just floating by with all these people who new best… I was moved from my local hospital to one who specialised with the particular cancer. I won’t it known I am grateful for what they did at the time but I was left with free floating cancer cells and was told I would need monitoring to make sure these don’t developed into anything else.. yes I’ve had regular scans and been told so far so good by drs that I hadn’t met in my original care… now my point I want to make is that when I was under my original hospital I met the cns nurse and the mso who said they would be with me through out my treatment and for the next few years, so any questions doubts anything on my mind I could turn to them.. but I was obviously past the other hospital which I met the mac support officer who just flew in the room gave me a folder and left, and I met the cns at first I put my trust into 1 imparticular but it seems and feels like they’ve done their job I’m out the hospital I’m not their problem… so when I see these we are here for you all the way adverts it whiles me clause I feel like I’m now a nobody.. I know I shouldn’t feel this way I should be grateful I’m still alive. But I’ve had no one to talk all my worries through with proper like. So I’m sorry when I say I just don’t believe this thing with there for you every step of the way
Hi
I am sorry to hear that you are feeling let down and understand that having been through cancer you need to talk all your worries through. Lack of communication during an overwhelming time can be very challenging. I know for me everything moved really quick to begin with and it wasn't till after treatment finished that I started to process everything and had questions and things I wanted to talk about. I did get an opportunity during my 12 weekly check ups over the next 2 years- but even those were focussed on checking for recurrence. My CNS however was good and would answer questions by email or phone when I had them.
I can recommend the Macmillan Support Line if you want to just talk things through and they can have a look in your local area to see if there is any support near you. Have you got a Maggies centre near you- many people find them helpful.
I found the HOPE course really good and it helps to work through some of those feelings that many people have.
Online HOPE programme for your patients | Macmillan Cancer Support
Is there anything in particular that you need to ask about or is it just more in general. There are many lovely ladies on here who will want to offer support.
Jane
