I’m writing this because I feel very let down. In the beginning last October when my cancer was found everybody was there. Dr nurses, nurse specialist and very quickly I was took in operated on, it was all over whelming that part. I’ll be honest I basically got told what was going to happen and I felt like I was just floating by with all these people who new best… I was moved from my local hospital to one who specialised with the particular cancer. I won’t it known I am grateful for what they did at the time but I was left with free floating cancer cells and was told I would need monitoring to make sure these don’t developed into anything else.. yes I’ve had regular scans and been told so far so good by drs that I hadn’t met in my original care… now my point I want to make is that when I was under my original hospital I met the cns nurse and the mso who said they would be with me through out my treatment and for the next few years, so any questions doubts anything on my mind I could turn to them.. but I was obviously past the other hospital which I met the mac support officer who just flew in the room gave me a folder and left, and I met the cns at first I put my trust into 1 imparticular but it seems and feels like they’ve done their job I’m out the hospital I’m not their problem… so when I see these we are here for you all the way adverts it whiles me clause I feel like I’m now a nobody.. I know I shouldn’t feel this way I should be grateful I’m still alive. But I’ve had no one to talk all my worries through with proper like. So I’m sorry when I say I just don’t believe this thing with there for you every step of the way
I hear you. It can feel overwhelming at times and you need to remember that these medical staff are still just 'people' and not super-human. Mistakes can be made, they get busy, tired etc...and they can't always be on hand at all times. However, have you tried yet to contact the Mc Millan Nurses for the online chat? I have - with mixed results. I contacted them a few times - and mostly they were very good, but you need to be clear what you need from them.
Make some notes beforehand before you contact them on the online chat (on this site) and you might find that they are helpful. At least it will be a start. Also, do have a partner, family member or friend you can lean on? Can you make an appointment to see your GP? It's tough having cancer and can be exhausting emotionally too, so spread your net wide in order to get the help you need. Best of wishes.
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