3rd Biopsy day tomorrow 24th April 23

Hi WILMA 08

I can't offer any advice as I'm half your thickness, pre child birth and pre menopause - and new to this whole sector. However, I can say I am sending you a big hug and hope someone more knowledgable than me (which means everyone ) comes along shortly.

But in the mean time, I hear you

Hello Wilma

I see that you have your 3rd biopsy today. I hope it can go as well as it can.

I think you are definitely right to speak to them about the pains and bleeding. I can understand how fed up it must be making you. 

Maybe it is worth asking about the progesterone coil and if this is what is causing some of these effects. 

Also you say you are trying to lose some weight to be able to have the hysterectomy- are they offering you any support with that. Losing weight is hard at the best of times. Maybe it something you could ask about?

Good luck for today

Jane

Thanks Crumpets or Toast personally both thank you  

Well you must have a lot on your mind especially the subject regarding preserving fatality we went through that as a family a few months back as our daughter had a 14cm cyst and they were unsure regarding cancer, but that was clear unfortunately they had to remove her right tube and ovarie.

So I am wishing you nothing but good luck and a wrap around cuddle 

Hi Jane 2511,  As with Doctor Rose my biopsy went well a little uncomfortable as I don't go for the day surgery but she knows her job that's why I trust her plus she is a really nice Doctor she really likes to no how you are, I spoke about the bleeding and period pains the stringy pee and clots, Doctor Rose  says that it's part of the treatment, I never spoke about the mood swings and low feeling or feeling depressed and totally knackered most of the time.

So following on - Unfortunately after the biopsy comes the "TALK"  unfortunately it wasn't what I expected I thought with the bleeding etc then my womb lining would be thinner unfortunately it isn't apparently were the coil is in position were the cancerous polyp was hasn't got any thinner therefore Doctor Rose took my hand and said " please don't be surprised if the cancer is still there " I had my big girls pants back on didn't get upset, although I was and said well we will deal with it.

Doctor Rose said that Doctor Mills the other oncologist is also looking after me and that when the results come in "She would phone me write away and Doctor Mills would also see me regarding the results" to me none of this sounds good and once again I just want to hide but I can't.

As for the weight loss it's run by NHS and you meet with them once a week for your weight and exercise, to be honest it's not for me I spoke with the one that runs the weight loss part and she just wasn't for listening I tried to explain that I am an emotional eater especially before biopsy time and her answer was "you just have to try your best were are times in your life that emotions take over but you just have to knuckle down" plus I was weighed three times that wee Monday I was 146.6 in the morning then the Tuesday I was 147.5 then at that shitty club I was 150.6 but hey hoo 

Good to hear that you have an understanding doctor and that your biopsy went well (although uncomfortable).

It is good that they will phone you straight away when your results come in as the waiting around is tough.

Although you are worried about going in to see the doctor to talk about the results maybe at least you will get time to talk through what is happening and what the next step needs to be.

The doctor has prepared you by saying that it is possible that the cancer may still be there but if it is, maybe you could think about asking questions such as...............

- If the cancer is still there, has it been controlled and remained the same?

-can the treatment be repeated and monitored? Has it had enough time to work?

- if the coil has not worked if there another hormonal option?

-is there an option to have a more minor operation where just the polyp is removed?

- talk about the weight loss and say that you have been doing the NHS option and it's just not working for you. Is there any alternative? Emotional/counselling type support? Weight loss medication? It is understandable to be an emotional eater that struggles with all of this going on. How much weight loss is needed to make surgery the option? (If that is what you want)

-what are the risks for surgery compared to the risks of not having it if the hormone option is not working?

When I see my oncologist I tend to write a list of questions like this and then go through them one by one. Sort of breaking it down and going through the different scenarios. It has worked for me. 

Hope this helps and I hope that you do not have to wait too long for your results.

Take care

Jane

WILMA 08 - Thinking of you and sending an extra big virtual hug.

for our biopsy results.

I think jane2511 has some great advice and wish you all the best getting the answers and support you deserve

Hi WILMA 08.

Delighted to report that after a chaser nudges (and the end of latest strikes), my results were issued to the online portal today.

It's not a 2nd cancer (or as they say, not yet but i need to act now) so I am delighted.

They're hoping that startingvwith progestogens could reduce the womb thickening, get the cell size down and back in shape (sounds like the cells need a diet like me) and control the endless bleeding. 

Will need hysteroscopies every few months while they monitor effectiveness.

Am glad the results wait is over.

Thinking of you

Hi WILMA 08.

Wanted to drop you a note as guessing your biopsy results will be in any day now. Thinking of you and wishing you all the very best

Hi crumpets or toast,  unfortunately no biopsy results yet this is my third week of waiting Monday 8th May 2023 as for my womb lining not any reduction on the thickness so I am not to be surprised if the cancer is still there saying that I have been really tired so poor hubby is watching me sleep a lot, ha ha. My pain levels are not great 

I am pleased that your results were better than suspected but what do you mean by it's not a 2nd cancer !!!!! I also see you are getting blasted with progesterone as estrogen feeds the cancer so technically your womb lining will reduce in size which reduces the cancer whilst your waiting on your hysterectomy.

What is the online portal I have never heard of it, perhaps because I am from Scotland or I know nothing about it lol

Anyway good lu

Hi WILMA 08.

So sorry to hear you're still waiting and not feeling so great. Fingers tightly crossed for you that results come in any day now. I found the wait hard when i got into the 2-3wk stage so I chased my results.

Re. 2nd cancer statement. I have bowel cancer and was 5 months through my 6 month chemo when I started on womb cancer fast track. 

Re. Portal. Hospital trusts are fast traking digital health plans, so many letters are now electronically posted on a patient/care portal which we can sign up to. I like the speed aspect as well as being able to download electronic copies which i find easier to manage than mountains paper.

Sending you an ultra big, pain busting virtual hug