I’m almost a year post op and finished treatment last May. I was predicted grade 1 stage 1a but was restaged to stage 2 (still grade 1) after my hysterectomy histology results. I’m just curious as to how common this is - to end up with a different staging to what was predicted from beforehand, eg the pre op MRI or CT, or to find out anything new that was discovered.
As you say, and from reading the contributions on this forum, it's clear there are lots of different medical opinions especially on the adjuvant treatment. I'll see how the brachytherapy goes and then see if any other treatment will be required. One step at a time! Thanks for your good wishes.
Petronella, I was under the impression that the most likely (but not only) place at risk of recurrence for lower grade (1a and 1b) cancers was the vaginal vault - the bit below where the cervix would have been. But I don’t know if it’s the same for grade 2 and above.
Hi Marmitefan59
All I know is that when I asked the consultant that should it ( my particular Serous type Grade 3) recur would it be in nearby organs?, ie bowel or bladder, he said no, it spreads throughout the blood vessels and cells carried to sometimes distant organs like lungs, liver etc. This may not be the same for grade 1 though because he specifically said ' this type is aggressive and spreads through blood vessels.xx
I don’t know either Marmite It seems to vary from consultant hospital and country Cancer treatments are thankfully advancing I said to my surgeon there must be a better way than aggressive chemo and radiotherapy and his reply was maybe one day but at the moment this is all we have
kind regards petronella
I agree that some consultants and hospitals see and do things differently, and that there may also be variations from patient to patient depending on the individual’s situation/overall health etc. But I believe there is also a national standard recommendation for what treatments are offered as my oncologist referred to it once.
Hi Madesp, mine was grade 2 stage1B with vascular invasion and my oncologist told me that I would benefit from chemotherapy as with it being in the blood vessels it could spread anywhere in the body. So I took the 6 cycles of chemotherapy because I wanted to give myself the best chance of it not returning,I also got 3 brachytherapy which i finished yesterday as it had gone more than 50% through my womb lining.xx
Mine is stage 1a Grade 3 mix serous and endometroid cancer. Pre op MRI and CT scans were clear and post op histology showed that the cancer had not breached the wall of the uterus. My surgeon seemed quite content about it all at my post op follow up appointment. I expressed concern about the cancer being more aggressive but she preferred to describe it as 'unpredictable'. Not sure if that made me feel better or worse or just more confused!
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