It’s a year since I was diagnosed. I can still remember the phone call I received from a registrar dispensing the difficult news at such lightning quick speed and in such a matter of fact way that everything inside me started silently screaming and panicking as j couldn’t take it all in. I had to ask her to stop while I caught up. Then it was waiting, then an MRI, chest X ray, waiting, then being given my predicted stage (1A), then waiting, a pre-op assessment, waiting, then a hysterectomy; waiting then my post op histology results that revealed I’d been restaged to a stage 2 and needed radiotherapy and brachytherapy. I was also told they’d found I had had a rare precancer in my Fallopian tubes which, if I’d not had a hysterectomy, would have led to high stage ovarian cancer. So basically being diagnosed with cancer potentially saved my life. Such a lot to take in. Then more waiting, then an oncologist appointment to explain my treatment plan, waiting, then 25 daily radio sessions and 2 brachy sessions. I was finished by mid May, A few mild bowel side effects in weeks 4 and 5, which settled down within a couple of weeks of treatment finishing. Had covid in August. Oncologist check ups in June, September and one more to come in December, then onto patient-led follow up.. I’m doing okay but had a bone scan which shows I have osteopenia (bone thinning) from the radio for which I need to take calcium and vitamin D supplement to try and improve my bone thickness. I will have another bone scan in two years’ time. I am still experiencing post radio tiredness but am hopeful that that will continue to ease. Not connected to the cancer, I have also been diagnosed with spinal stenosis (from arthritis), causing leg pain, and may need spinal surgery. I still have my tattoo marker dots from my radio. But I’m okay. I’m recovering physically and mentally and feel a bit more like myself every day. But there’s just something about having cancer that changes you. I’m me again, but I am also changed. What a year it’s been. It feels like I’ve mislaid a year somewhere and am now trying to catch up. Onwards and upwards.
EDITED TO ADD: And still using a dilator or vibrator once or twice a week as told!
Hi MF, but here you are, positive in attitude and stronger for all you've been through. Hopefully you will be back to full strength physically soon. You're such an example to us all. Fingers crossed for your spinal problem. I hope they will manage to sort that, too. Big hugs. Xx
What a crazy year. I very much agree about the change.. I feel like a completely different person than I was before this - to be honest, maybe not all a bad thing. Wishing you a much less eventful year and some time for you to enjoy yourself. Oh .. and more care-free wines and nights out at the Arts Centre :) Thanks for the tips, knowledge and encouragement to others as you went on your own ride.
Hi Sabine, not sure about positive, certainly not all the time but I do try to focus on being pragmatic - getting done what needs to be done. Thanks for your good wishes!
Thanks Cakenport - we were actually there last week watching a production of King Lear! A brilliant performance- except I got the giggles at one point when a character’s eyes were being gouged out and I found it a bit comedic! I think I was the only one to do so! Hahaha! All the best for your continued health and happiness too.
Hi Marmitefan I echo your words! I'm still me but different, I look different and feel different. When I look back at Fotos of me last year I can't believe what the hell I've been through yet I'm here, you're here and we carry on. I think for me, the fear that it may return is very real and I can't seem to shake that off. But every day I try to be normal and live normal but it's definitely changed me in some way, has it made us stronger? Probably yes.
I'm sorry to learn that the radio treatment has left you with thinning bones and hope the supplements will help you with that. I've been told that the side effects of treatments take far longer to recover from than we imagine and symptoms can be up and down.
It's almost a year since my hysteroscopy and then the dreaded phone call approximately a week later! What a year and so glad it's over and all I can hope for is that next year we can all celebrate a life of good health and some happiness and God knows I've been sad for too long!
I wish you well and yes, onwards and upwards xxx
Thanks Mad - we were diagnosed about the same time but our different histology results led us down different paths; but I wanted to say that I really appreciated your companionship and support throughout that time. Thank you.
I was just thinking the same. This time last year was a very dark place for me waiting to have my hysteroscopy and using dr Google far too much until I found this group! I don’t come on here so much these days but I couldn’t have gone through my cancer treatment without everyone’s support on here. I’m still having 3 monthly check-ups - so far so good. I too feel like a different person now and the thought of it returning is always in the back of my mind. I’m in a much better place this year though and so grateful that I had my op, radiotherapy and brachytherapy. Good to have an update from Madesp and MarmiteFan (It was so reassuring having you both to virtually hold my hand as we went through this together). Good luck to everyone else who is currently in remission, going through treatments or waiting for results. I think the waiting was one of the hardest bits for me, but you can all do this with the wonderful support on here x
I agree about the waiting, Lolabo. It really IS the worst bit. I am still waiting for my post-op histology after four and a half weeks, to find out if I need any further treatment. Sleepless nights, trying to keep busy to keep my mind off it... This group of lovely women are keeping me sane, knowing I'm not the only one going through this. I don't know what I would have done without it. Good to know you have come out OK on the other side. Long may it continue! Xx
Hi Lolabo, Thanks for your message. Yes, I've been in touch with them a few times. Two days ago the doctor's secretary said there was nothing back from the lab yet, but it shouldn't be long now. She would let me know as soon as there was anything. I keep being told by friends and family that no news is good news. Fingers crossed... X
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