The Waiting Game

Hi and a warm welcome to our group in the Online Community. Here you'll find a lovely supportive group of ladies who've all been where you find yourself now. Don't worry about the rambling, we've all done it together with ranting and raving!

We all agree the waiting game is the hardest thing. The not knowing is dreadful, we can fully empathise and I get you want to scream when your work colleagues ask how are you feeling? I could write my answer but it'd probably be taken down as it would have too many expletives LOL.

Until the histology has been completed after your hysterectomy, when the organs and tissues have been examined, the stage and grade can't be confirmed. Once that has happened, together with the Lymph Node sampling and LVSI scores (Lymph Vascular Space Invasion) then your team will be in a position to see if adjuvant treatment is needed. For some ladies just the hysterectomy is sufficient.

If you want to ask any of us any questions please come back and do so. There's always someone around and we can offer a shoulder to cry on, a hand to hold or listen to a rant, we’re here for you.

It might also be a good idea to download this booklet Understanding Womb (Endometrial) Cancer. I found it invaluable on my journey. 

Click on the link I’ve created to find out more information covering diagnosis and treatments for Womb cancer.

You might also find this link to what to take in my overnight bag useful for when you have surgery.

You can speak to someone in confidence by calling Macmillan Support on 0808 808 0000 - 365 days a year 8am to 8pm It's free from mobiles and landlines. The friendly team are waiting to take your call.

There is also an Ask an Expert section, but you should allow two to three working days for replies from our expert team.

Sending you welcoming hugs, Barb xx 

Thank you Barb,

I really appreciate all the information and have downloaded the booklet so will have a little look at that.

Thank you again x

Hi Maria, we’re glad you’re here! Welcome to the roller coaster ride! Hopefully you will get your MRI results soon - you may either get them from your CNS by phone or you may get called in for a face to face. For me it was the latter. Do you know what day your MDT meet? 

Hi,

I don’t unfortunately but I will give my nurse a call on Friday if I have not heard, hopefully she will be able to tell me.

hope you are doing okay x

Hi again Maria, usually the results have to go to the MDT before we are told. I know of one person who was told by her CNS before they’d gone to the MDT, but at my hospital the CNS are not allowed to say anything until the MDT have met. My MDT meet on a Friday morning, so results tend to be given out on a Friday afternoon. It honestly wouldn’t do any harm to phone your CNS tomorrow and ask when you might be likely to hear/when your MDT meet.

I will try and give her a call today 

Hi MarmiteFan59

Took your advice and called my CNS and the MDT are meeting tomorrow morning and she has asked that I come in tomorrow at 11.30am for my results

Thank you so much for your advise, I really appreciate it x 

Maria, that’s great news - well done for calling! Our health service and system are great - but they just need a bit of a nudge or shove sometimes! Let us know how you get on! 

Will do 

Hello and welcome , I can definitely say the waiting is hard, your mind just feels with all kinds of thoughts,  I know mine did when I was diagnosed.  I am glad your getting your results tomorrow and have received some wonderful advice.  One thing I will always say take one day at a time,  yes easy to say not easy to do but ultimately I found it more helpful in my experience. Good luck with tomorrow I have my fingers crossed for you. 

Sending gentle bear hugs