Results

Hi Walking lady,

I had my op in May  and am still having a pain when lifting or carrying on my right side. I have had a CT scan which shows that everything is okay  as well as 2 appointments with my consultant who said everything was clinically fine.

It was actually my GP who gave me the reason why. She said that she could feel where they had cut through the muscle and it was still swollen.  Apparently it can take up to a year to get back to normal after this op. 

You have no feason to feel ashamed about feeling frightened,  it is a natural reaction and one that I am sure we all feel.

Good luck with your results tomorrow. I hope everything goes okay for you.

Sending you the very best of wishes and a big hug xx

Hi Walkinglady. You have had such a long delay to hear the results, such a difficult thing to cope with the waiting and our minds are bound to go into overdrive!  They will give you a check over tomorrow and hopefully some reassurance that you are still healing - write down all the concerns you have, so that you remember to ask all those questions 

I will be thinking of you tomorrow - they will have a plan for your treatment and I am sure it will be a relief to feel that you are getting going forward again.  Sending huge hugs

Hi Amycdi. thank you for your lovely reply.  My mind has been going into overdrive thinking it is the cancer.? Is it lymphoma? Has the stitching inside not worked?  I know that the CSN will check me over tomorrow so hopefully she will confirm I actually am healing okay.  XX

Hi Walkinglady It's awful waiting for results and our minds go into overdrive at this time. It'll be interesting to see what further treatment you are going to have. I myself was grade 1b/grade 3 serous. I was offered optional brachytherapy as a "belt& braces" to prevent recurrence. However in hindsight, knowing what I know now, I wish I'd had chemotherapy at the outset. My chemo started more than a year after the Brachy treatment.

I also hadn't had children. I sailed through menopause with nothing other than hot flushes - no HRT. My body just obviously produce Oestrogen.

It's normal to be frightened - I am. Apart from the ladies here I can't really talk about it to friends and family as no-one's had cancer. One friend is particularly down to earth with a good sense of humour, that's what I need to hear, not the slightly "pitying" tone another mate has but, bless her, she doesn't realise she's got this tone!

Love, hugs and support back to you, Barb xx

Hi Trish,

so sorry for my late reply. I am sending all my love and positive hugs to you today. I’m sorry you have had so long to wait, and as we’ve said so many times, the waiting and worrying is the absolute pits to deal with. After what you have already been though, you know you have massive strength, and whatever the treatment may be you know deep down you will face up to it and show it your determination to cope with it . Remember, this appointment is your opportunity to ask as many questions as you feel the need to, it’s your appointment to see the consultant as much as their appointment to see you. Let us know how you get on Trish, I will be thinking of you all day. Lots of love Emm xx

Hi Barb. i am on countdown for my 2.45pm appointment and every scenario has of course gone through my mind.  You are a real inspiration to all of us and special thanks for all the support you keep on giving even though you are going through treatment yourself. XX

Bless you, thank you!

Blubs and hugs, Barb xx

Thanks Emm  for your good wishes-I will let you know what happens xx

Xxx

Hi there Walkinglady. I hope everything has gone well for you today. I just want to add my story so you can see that you are still at an early stage in your recovery from surgery. I had keyhole surgery in 2017. I had an early stage adenocarcinoma. I have been a fit and slender long-distance runner and cyclist, but it took over a year to rebuild my stamina even though I had been so tough beforehand. I had noticeable swelling of my tummy for months after surgery, I couldn't comfortably wear my jeans for ages and I remember feeling so tender when someone bumped into me on the bus one day. I was very strict about not lifting for 8 weeks. I was banned from running for 12 weeks or more and when I began again I felt as weak as a kitten and could only go for a few minutes! I had bouts of fatigue for months. I know that all sounds grim, but I did improve slowly. I saw a specialist physio for a few sessions after I resumed exercising because I had a fear of damaging myself. I followed the advice and exercises from the physio, and took it slow and steady, and eventually I was doing long runs again. Other peoples' expectations were hard to handle. Some expected me to bounce back super-quick and I think others had written me off. I was able to do the everyday stuff like walking round the shops after a few weeks but anything more took a lot longer to come back. Certainly tell your treatment team about your concerns and any symptoms, but I must say I was surprised how long it took me to get back to full strength. Also: we are all different and it is not a competition! I had a fear of meeting another patient who was much stronger than me - climbing the north face of the Eiger or something - and would put me to shame. But I haven't met anyone like that (yet)! Best wishes.