Hi - just wondering if anyone else has had stage 2 endometrial cancer? Did you need radiotherapy/chemotherapy after the hysterectomy? just had my mri results back today and I’m now waiting for a date for my op, but want to prepare myself for what lies ahead.
I'm sorry you have been dealt this blow and Hooe yiu get successful treatment for a complete cure.
You have stage 2 which means it has spread through to myometrium and cervix but is still contained the uterus and hopefully not spread further. Do you know the GRADE (1-4)of cancer. Ie is it slow grade or high grade.
My mri shows stage 1A but they were unable to tell.me what grade.
Bless you Lolabo - I imagine your mind must be in a bit of a whirl and understand your need to want to know what to expect. I’m sure other ladies will be along soon who have been or are in your situation. Mine is currently 1A but I’ve read up on it all in case my staging changes after my hysterectomy. My understanding is that stage 2 is likely to require some radiotherapy afterwards. Have you been put in touch with the specialist nurse team at your hospital? Mine are wonderful and happy to listen and answer all my questions and I imagine yours would be too. Hoping you get your pre-assessment and surgery date soon.
Thank you for your reply. No I don’t know anymore yet as I’ve been waiting for my mri results and was just told it’s stage 2 and I’ve been referred to a different hospital. I’m terrified if I’m honest as I have no idea what lies ahead with my treatment xx
The hospital have been really good, but I’m now being transferred to a different hospital as they only deal with stage one. I’m now waiting for the new hospital to contact me, but was in too much shock to ask about my treatment when I was told earlier xx
Lolabo, there’s a couple of things you could do while you’re waiting for the new hospital to contact you: you could contact your old hospital and ask them for the phone number of the specialist gynae nurse team at the new hospital, so that you can get some support now; to phone the Macmillan help line on 0808 808 0000, available 7 days a week 8am-8pm as they can give both clinical and emotional support. Bless you and thinking of you as you find your way through this.
That’s really kind of you. I haven’t got round to phoning the hospital today as I’ve had to sort out lots of work issues today. Trying to get everything in order so I’m ready for my op. Trying to tie up all the loose ends and keep my mind busy, but as soon as I try to switch off at the end of the day my mind then goes into overdrive with worry again x
Bless you, I feel for you. I hope you are able to find time to call the hospital tomorrow as being able to contact the specialist nurses may be therapeutic for you. It has surprised me how much it has helped me when I’ve called them. I also met with one of them in person when I wanted to talk about how to tell family. I would also once again encourage you to call the Macmillan help line. As well as offering emotional or clinical support, there’s also financial help available unless you have lots of savings. A friend of mine has stomach cancer and Macmillan gave him money for energy bills and fares before his op. The Macmillan help line is open till 8pm so you can always call them in the evening if you find the evenings especially difficult. I imagine you should hear soon from your new hospital. Depending on how they do things, you may first get an appointment to see the consultant (if you’re getting a new consultant too) to talk about your treatment plan as he/she may want to meet you face to face. And then an appointment for a pre-assessment. Or you may meet your consultant at your pre-assessment. And then you’ll get your surgery date, which will involve a further blood test the week before, and a PCR test a few days before. So you will likely have some more time for planning. Take care.
Thank you - that is really helpful. My nurse had said the new hospital will be ringing me soon with a date for the operation, so I had my bags packed thinking it would all be happening soon. I’m not in such a panic now! I think I’ll call macmillan tomorrow for peace of mind. Thank you so much for your advice and support.
