Hi New and frightened and confused

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I am 59 , had breast cancer 4 years ago so after mastectomy have been on tamoxifen ever since. Periods stopped August 2018. Beginning of November had a week of bloating and mild pelvic pain so rang GP. NP suggested blood test CA125 which came back a few days later as slightly high at 39. So then fast tracked for TVS which showed ovaries ok no mass or fluid but picked up thickening of uterus 18mm. So gynae appointment 24th November. Tried to take a biopsy via hysteroscopy but cervix wasn't planning ball despite a lot of trying which was stressful. Gynae said he would send me for an MRI to see if the lining was in fact 18mm in which case he would do  another hysteroscopy under general anaesthetic or if its was polyps would remove them again under GA. I haven't had any bleeding so gynae didn't seem bothered but having done some research I know you can have womb cancer without a bleed. Feeling really worried as going for MRI results tomorrow. MRI was 3 weeks ago and feel like its been a lifetime waiting. Worried and confused why he didn't just do another hysteroscopy under GA to get a biopsy done. Does he already know I have cancer and checking if its spread. Feel like I have wasted a month because if I do need a hysteroscopy biopsy it wont be till after Christmas and then possible wait of another 3 weeks so end Jan which will be 3 months from first reporting symptoms. Help , going crazy!!! Sorry X

  • Hi. VivH

    Although all the ladies here have different beginnings and ends to their stories one thing we all have in common is the whirlwind of emotions so you never have to say sorry for the way you are feeling.  I don’t know why your consultant made the decision to go straight for an MRI scan as they seem to have varied ways of working in different parts of the country and the waiting is so hard but what ever the result is they WILL have a plan.  It is no use me saying to you try not to worry but you should know that this group will be sending  love and  hugs out to you tomorrow.  XX

  • Thank you. Just don't think I can go through more operations and treatments after breast cancer. I just want to give up. Am rowing and not speaking to my husband which we never do, but he's being very positive to the point of denial saying it may all be nothing and getting angry with me for looking for advice from forums like this saying I haven't been diagnosed yet so why do it. My kids who were so supportive when I was diagnosed with BC are nowhere to be seen. Think they think I got through that and will get through this. Feeling very alone. Thank you for your kind words X   

  • I agree completely with @walkinglady - the waiting for every next step, appts, results etc etc is really stressful and yes, the whirlwind of emotions it brings, particularly in the early hours.  I will be thinking of you tomorrow - fingers crossed you get the answers to your questions.  If it is any consolation, I get very tetchy in the couple of days before appointments, or when results are due!  My husband also has the laid back approach -  he feels no need to worry until we are told there is something to worry about!  Sooo annoying when I am full of worry about every possible scenario.  Take care and fingers crossed Fingers crossed

  • I understand how you must be feeling. Just want to wish you all the best for tomorrow and hope you get the results you want x

  • Hello , welcome to our little corner of the community and i can see you have already had some lovely responses. Firstly i can honestly say all the waiting seems endless, and is actually in some part the worse because our mind are in overdrive thinking all kinds of things and its scary. My journey was difficult in it took near 12 months to get a definitive answer to all the problems i was having and fobbed off with just fibroids, put on the pill for months and feeling worse, but i did have irregular bleeding. But we also know that sometimes our bodies respond to things differently. MRI imaging is really good and they can see assorts in them which is why they are incredible, it gives them a guide to what is happening. We can all say its a whirlwind of emotions and its easy to say not to worry about it until you know what is going on, but we know you will worry, whatever they see or not. Consultants seem to all have their own ideas of how to proceed and maybe they felt a scan would be helpful to do first and if they feel it’s necessary to go for a hystroscopy and take a biopsy. Fingers crossed for you today at your appointment, I hope you get some good news but whatever happens please know everyone will be with you today and sending you some support.

    Sending some gentle bear hugs Bear 

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  • Hi Vivh, I have a different type of cancer called leiomyosarcoma which is incurable but hopefully can be managed with 3 monthly scans and consultations. My sarcoma was inside a fibroid and was removed whole. It is extremely aggressive and rare. When I went to the Christie cancer hospital to get the results from my consultant I asked if I should say I have cancer or I'm cured of cancer. He replied that I should consider myself in remission but it usually comes back within two years. My husband heard my sarcoma has gone and I should just put it out of my head because I don't have cancer. He like your husband hates me reading posts on the forum. I know he just wants me to be positive but as most women on here know it's not that easy. I hope you get your appointments soon. Take care.

  • Hi Deborino, thank you for your reply and sorry to hear your diagnosis. Hopefully it can be managed and if they are monitoring you regularly anything that comes up will be caught early. I saw the consultant last week and he said he was concerned and wants to do a hysterectomy asap so I am booked in for the 10th January. I wont know anymore until after I get the results a couple of weeks later but I feel better having spoke to the consultant and although really not looking forward to the surgery I am happy to get it all out. I have been going down a very dark hole recently , dragging my family with me which I know wasn't fair but I felt I had no control. I did explain in the meeting with my husband present that I needed to research and speak to others in a similar situation because it offers me some control. It meant that when I saw the consultant there were all sorts of questions that I had which he was able to answer which eased my mind somewhat. Since the meeting I am calmer and trying to be more positive at least in front of my family. Wishing you a Happy & Healthy New Year X