It's a year since I had my hysterectomy (TLH/BSO + 14 pelvic lymph nodes) which then confirmed Stage 1b Grade 2 endometrial cancer with no LVSI. I was in and out on the same day, albeit a bit groggy on the way home, and had three sessions of brachytherapy from mid December.
When I started on this journey, my partner suggested I keep a diary of what was happening. I'm glad I did, and he wrote in it too, charting how he felt about what was happening to me, and to him, and to us. While I was going through treatment, his mum was also in and out of hospital, making things even more tough for him. I'm so glad I kept the diary, and write in it still. There's lots of details on mundate matters, such as how many steps I managed on Day 3, to when we became sexually active again, and memories of wind, wind, wind, and the occasional appearance of a bowel motion to everyone's relief. I'd forgotten lots of little things too - but still have reminders of the day (my right hip and left thigh both continue to hurt from, I think, being in a fixed position on the table for so long). In addition to my diary, I joined this forum, where I experienced the amazing support of others who were going through, or had gone through, the same as me. This helped enormously as even with supportive partners there are things they cannot understand. I know I often thought I wouldn't be here today, and am grateful to the medics, nursing staff and the Macmillan nurses, and all those in the NHS who tended to my care, and continue to do so. I hope to return here on future anniversaries, and wish all of you well on your journey.
Hugs to all, Dx
Wow Dreamweaver, how a year has flown by. The diary idea sounds an amazing idea and i am glad its helped with some of the lighter moments too.
sending big Bear hugs
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Dreamweaver Hi D, lovely to read your post. In a way I wish I'd kept a diary, just thought I'd remember it all. Good thing I've a step counter on my phone as I could see I was back to 10,000 steps on 11th October having had my op on 17th September.
As for sexually active, that's distant memory for me what with his hip. He's having a replacement on 19/11 so might get a Christmas pressie this year LOL.
Your message uplifted me, nice to hear from another member of "Class of Covid Year 2020". Onwards and upwards. I myself cannot praise our NHS enough, just seeing a bit more of them than I'd like at the moment!
Sending hugs, Barb x
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Dreamweaver Hi D. Ha, I did laugh at that - get to the bottom on my bowel problems! Well said! B xx
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Hi D, another one here from Covid Class of 2020! My op was August 2020, and my three rounds of brachytherapy finished last November. Good to hear you are doing well, as am I. I’ve had three follow up appointments, two of which were telephone consultations with my CNS.
Lucky you to resume your sex life. I tried a few times but found it quite difficult. I think I have switched off from that part of my body, especially using the DDs ( dreaded dilators!) twice a week. Think I may need a bit of counselling to get back to it as I know my husband would like to resume!
I wish I had kept a diary. I did fill in the Macmillan notebook I was given to record what was happening. But we certainly go through the whole rainbow of emotions at different times. I still have a vague sense of unreality about the whole thing, as if it was just a horrible dream. And we all seem to have little twinges and niggles, my worry at the moment is about a prolapse, so at my next consult I shall mention that.
Like you I am so grateful to the NHS staff who have been brilliant both in treatment and in follow up. So big cheers to them, and big cheers to us all for getting through this together. Keep well,
love Viv x
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