Extremely anxious

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I have recently been diagnosed and hysterectomy scheduled for 26th October. After MRI I was told Stage 1 and Grade1 which calmed me down just a little. I realise that until post -op that they cannot be absolutely sure but people talking about re-grades is really stressing me out.

Is there anyone out there who actually remained at the same grade and stage after hysterectomy that could calm my mind and give me hope. I have four weeks until my operate and this is sending me crazy. 

I am really considering leaving this site. I know everyone has to speak about their experiences but it is really bringing me down. 

Good luck to all and take care. XX 

  • Hi Shirley, I  totally understand how anxious you feel  and all the waiting around just feeds the anxiously even more. I was diagnosed back in July 2019, it was such a shock! After my MRI  it was thought to be stage 1A grade 1 and following my hysterectomy in August 2019 I was graded exactly the same. I didn't need any other treatments and was put on the patient initiated follow up plan for 5 years. So far I  am feeling good and hope this continues.

    I hope everything goes well for you.

    Carolina61
  • Hi

    Thank you so much. I know that nothing is 100% until final biopsy of the removed womb but I have felt so deflated reading some comments. I really appreciate your reply. Good luck for the future. X 

  • hi shirley try not to get too hung up about grades. if the cancer is contained in the uterus which 9 times out of 10 it is that is the positive. my grade went from 1 to 2 after surgery but it didnt change my treatment. it just indicates how fast the cells are dividing but its still a slow growing cancer.

  • Hi Shirley,

    I was given the information that I was Stage 1A, and grade 2 before my operation. The diagnosis remained exactly the same afterwards in spite of waiting for an operation an extra 2 weeks! I am now 4 years after the operation. Try not to take to heart all you read. This waiting bit really is the worst bit. I found keeping myself busy was the answer. Cleaning things I knew I wouldn't be able to touch for a while, getting the garden straight, freezing some ready meals, etc.   xxxx 

  • Hello

    i was told I was Stage 1A and grade 1 following my hysteroscopy and MRI.  I had to wait three months for my hysterectomy, but was still Stage 1A grade 1.  Take heart, there are lots of us out here.

    Sending strength

    Pippa xxx

  • Hi

    Thank you so much. Take care! X

  • Hello Shirley100.  I was stage 1A grade 1. I was given that information at diagnosis, as a result of my hysteroscopy/biopsy. I did not have an MRI. I had surgery (TLH and BSO) and wasn't told any different afterwards. I did not need further treatment and here I am nearly 4 years later. Still a little runner, hiker and cyclist. Have a look at the thread called "What to take in my overnight bag?" - that will give you something practical to think about before your operation. I think there are other women who have had a successful outcome but they don't visit this site now because after all they are out the other end of the process. I am here because at the moment I have time to read it now and then, and see if I can answer questions. So, chin up Shirley, wishing you all the best. I remember what a daunting time it was when I first had that diagnosis, I had really irrational impulses like wanting to go abroad (as if the cancer would be left behind at home) and wanting to jump off the hospital trolley and run away (really? in my open-backed hospital gown and no shoes? that would not have ended well!). LR.

  • Hi

    Thank you so much. I think I am losing my mind. It’s always worse at this time of night when it stops you sleeping. Your words mean a lot. XX

  • Hi I'm still grinning from ear to ear at the vision of someone charging off down the road barefoot and gown flapping behind her - some sort of Superwoman?

    That's what we all are on here, Superwomen. We've all been there had the tests, suffered sleepless nights, had the ops, done the treatment and come out the other side stronger and better for it.

    I never in my life expected to be in the position I am now, I never expected to be diagnosed with cancer - but it happened and if now I can give any reassurance or virtual hugs and support I'm happy to do so. As LR said some ladies leave the group wanting to forget about an unpleasant time in their lives. Others pop up now and again, touch base and it's lovely to see them back. We go through little groups all facing the same tests, scans and ops at the same time and that builds up a bond that's so strong when you consider you'll probably never meet!

    I'd never done social media before and this was the first forum I'd ever joined and for me it's changed my life as did the cancer. Strange to say I'm happier for it, 

    Big hugs, Barb xx

    Don't worry you're not losing your mind! Hugs, B x


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