Results

Great news. I've also been told today it is grade 1. Have they told you what the plan is? X X

Hi

Hysterectomy on 26th October, hopefully that will be it but obviously awaiting final biopsy of womb. So happy. Wish everyone could have the same result,. Very emotional day. love to all. Xxx

Hi Shirley100

Great news, so pleased for you. I think the weepy bit is like a pressure cooking going off, sending you big hugs. I was in the hospital hotel this day last year for my op tomorrow. Seems like a distant memory now but I still remember all the emotions I went through.

Hugs, Barb xx

Hi Shirley,

I completely get everything you say & are going through. I have my operation 2 weeks today,30 September, so am now in self isolation as per hospital rules. I am so frightened, I know the mri has shown a 1a/b, but as we know until pathology confirms, the wait will be torment. Today I have been thinking every hour, oh, I wonder how I will be now, or, I wonder if it will be my turn yet….just tormenting myself, but whatever you try to stop, you can’t! Knowing there are others here who we can off load to is great comfort, even though I have now known my diagnosis for nearly 3 weeks or so, it still seems surreal, I just wish it was over!  Take care, love Emm xx

Hi Emm & Shirley. I was "Under the keyhole" at this exact moment this time last year as they walked me down to theatre with a porter (to stop me making a run for it!)

It'll all be over before you know it but the waiting is the pits. Most ladies cleaned out their kitchen cupboards, One even made new curtains - I think I'd packed and repacked my bag!

Sending hugs, Barb x

Hi Mrs BJH

Thanks for your message, I don’t know how I am going to get through the next six weeks. I am sure Emm feels the same. 
Just about to go shopping for new slippers etc, trying to keep busy. 
Did you recover well after keyhole surgery? 
How long did you then have to wait for the results?

I find this site to be quite soothing knowing  that you are all out there understanding what I am going through, 

Hugs to you all. Xx

Hi Shirley this forum is what helped me so much. For once in our lives we can all say with honesty we know what  it's like! 

I suffered discomfort rather than pain after keyhole surgery, was careful about bending and not lifting anything heavy. I've always walked dogs so was back to taking my little dog short walks in about 2/3 weeks with custom made poo-picker. Couldn't handle the deerhound for months!

Back to easy 3 mile walks week 4&5. Drove for first time after 6 weeks - had to take myself to Brachytherapy. My car's automatic - easy to drive and do emergency stops (with a pillow protecting my tummy) hubby's manual might've been a bit harder. Check with your insurers before you drive - they all have different rules.

My results came through exactly 2 weeks after op. Received a call to see Oncologist next day.

Hi Barb,

oh it’s so great to hear your comforting words, honestly, I’m just so glad no one can hear what’s going on in my head! Just as Shirley says, we don’t know how we will get through this, but, god willing we will! The flow will just carry us, as we are now on the conveyor belt, the worse thing is not being able to see & hug my family, I know it’s for the better good, and I know it’s to make sure the surgery goes ahead so I can  hug them again in the future, because this disease doesn’t wait for no man! But I feel like I’m being punished at present, cut off & nothing really nice to look forward to. I have fibromyalgia very bad on top of everything, so have chronic pain and fatigue daily, so although keeping busy seems a fab idea, it’s a pacing game everyday with fibromyalgia, & too much thinking time. Sending much love, Emm xx

H

Thank you. It’s good to have an idea of what to expect.  Being in the dark is so scary! 

I feel for you Emmpea. I suffer with spinal cord compression so I know what you mean about difficulty with movement and pain. 

let’s all hope for a healthier and happier Christmas.

Take care everyone. 
xx

Hi Shirley and Emmpea, yep the next few weeks are definitely the hardest to get your head around. I’m like Barb, had my op last August. Strangely I didn’t have to self isolate, just had to have a Covid test 2 days before. Before I had my diagnosis I was fit and healthy and only a few pounds overweight, no underlying health issues.

Because I had had open surgery for a ruptured appendix less than a year previously I think I got the top surgeon, he was such a nice man. I had to do a bowel cleansing diet two days before which meant only liquids and jelly!! On the day I went into hospital, I was taken to a waiting area where I eventually got undressed gave all my stuff to the nurse so it could be delivered to the ward,  and had a chat with the anaesthetist, then the long walk to the theatre. My surgeon popped out to say hello, then I got onto a trolley and the anaesthetist put the cannula  in my hand and I don’t remember anything else!

The thing I had worried about before was having a catheter in, as I figured it would be hell to get it out. As it turned out I was so drowsy I didn’t realise it was even in! I didn’t have a very good night because they pump you full of air, which can give you a pain like bad indigestion or trapped wind. Surgeon popped in to see me that night and he personally phoned my husband to say it had gone well, and I saw him again the next morning when he said the catheter should come out ( that’s when I first realised it was in!) That was absolutely no problem, didn’t hurt a bit as it came out and I was then able to get out of bed and walk to the loo and sit in the chair.  I would have been sent home but my bowel was a bit sluggish so stayed in that day and was sent home on day 2. That really is one thing to be wary of, don’t get constipated, take measures right away!

I had to wear the stockings and take anti clotting injections for six weeks which was a drag, but I really did recover very quickly. I only had paracetamol as pain relief and only took that for a few days. As I remember by week two I was going for little walks with my husband and just going a few steps further each day. No dressings on the wounds, just dissolvable stitches and glue! So surgeon said showers were ok but not to wallow in a hot bath! I did take it very easy at first though, with no heavy lifting. I was back driving after 6 weeks, but didn’t go back to playing golf till 12 weeks had passed, simply because my trolley is very heavy to lift in and out of the car.

So I hope this helps reassure you. Everyone is different of course and if you are suffering with other problems as well it might be a bit tougher, but keyhole surgery is a marvellous thing. I think I had to wait nearly three weeks for my results, grade 1 stage 1b. Now on three monthly checks, mostly by telephone.

So good luck girls, and I hope you both do well,

Viv x